Join Team CMT
Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).
By joining Team CMT and participating in an event you will help us fund research and programs for Charcot-Marie-Tooth. Examples of past event: running event, poker night, paint night, Card party, golf outing, letter writing campaign and more.
3 Ways to Join
1. Participate in an athletic event in your Community
- Register with Team CMT (Click "Register" button below - opens in a new window.)
- Receive a link & directions on creating a fundraising page
- Share link with family & friends
- Email [email protected] for questions or marketing support.
Upcoming Events
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Past Events
Join Us for a Private Screening of Bernadette: January 29th in New York City
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
HNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014
The Hereditary Neuropathy Foundation (HNF) has been chosen as the Charity Partner for the MetroTex Charitable Trust Run for Fun.
HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
Personal Profile: Estela Lugo, Designing Décor
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
Camp CMT: Great Opportunity for Children with CMT!
Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in 2013, to Camp Twin Lakes.
3. Host "Your Own" Event
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more! Choose from one of our past events below and email [email protected] for details, or submit your own!
Past events:
- Spin for a Cure
- Poker Night
- Set Sail for CMT
- Card Party
- Golf Outing
- Go-kart Party
- Cocktail Party
- Bake Sale
- Clay shoot
- Paint Night
- Gala & Auction
Submit your own Event!
Posts related to events and Team CMT Members
From our Blog
Special Events
Meet Elizabeth Stenz, Team CMT Member
Her sister was diagnosed with CMT when she was 14, and since then her and many family members have become very familiar with the disease and have worked to raise awareness.
Grab Your Shoes and Spin CRANK Style NYC!
Dust off those spin shoes and come out to CRANK NYC (Upper East Side – 1658 Third Avenue) Saturday, September 27, 2014 from 1pm to 3pm and Spin-For-A- Cure!
Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth
In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.
Member Alyson O’Connor Won’t Let Her CMT Stop Her!
Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.
Saturday September 27, 2014: Spin for the Cure New York City
Grab your shoes and spin CRANK Style NYC!
When: Saturday, September 27, 2014
Where: 1658 3rd Avenue New York, NY 10128 (between 92nd & 93rd Street Upper East Side)
Time: 1:00 – 3:00 pm
November 15, 2014: Havana Nights Fundraiser
Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.
Thursday, December 4 – Saturday, December 6: Champions for Charity Shop Til You Drop Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop
Hereditary Neuropathy is participating in the Americana Manhasset’s Champions for Charity®. From Thursday, December 4 through Saturday, December 6, over 70 participating Americana Manhasset and Wheatley Plaza stores will donate 25% of designated pre-tax purchases.
Margie’s Special Birthday Wish
Your donation will go to critical research that will help cure Charcot-Marie-Tooth (CMT), a progressive neuromuscular disease.
Patients Helping Themselves With The Global Registry for Inherited Neuropathy
In general, the collection, analysis and dissemination of data on disease progression and patient responses to long-term disease management strategies in registries represents a valuable way to improve understanding of the disease and keep medical professionals up to date on the latest advances.
Curry Turkey Salad Sliders
Author: A Passionate Plate
Serves: 8 sliders
A great way to use up leftover holiday turkey. If hazelnuts are not available, use another nut of your choice, such as almonds, walnuts or pecans.