Join Team CMT
Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).
By joining Team CMT and participating in an event you will help us fund research and programs for Charcot-Marie-Tooth. Examples of past event: running event, poker night, paint night, Card party, golf outing, letter writing campaign and more.
3 Ways to Join
1. Participate in an athletic event in your Community
- Register with Team CMT (Click "Register" button below - opens in a new window.)
- Receive a link & directions on creating a fundraising page
- Share link with family & friends
- Email [email protected] for questions or marketing support.
Upcoming Events
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Past Events
Hot off the press
Some recent papers on Charcot-Marie-Tooth (CMT) disease go to show that we are steadily and impressively peeling back the complexity of the biology even though it is a relatively common rare disease with several thousand publications on it.
Arclight Presents…BERNADETTE (NYR) September 17, 2013
Cast: Bernadette Scarduzio
Bernadette Scarduzio was born with the most common inherited disease that no one has ever heard of: Charcot Marie Tooth (CMT) syndrome. CMT is the number one hereditary neuropathy in the world, affecting 1 in 2,500 people or nearly 2.6 million worldwide.
September is CMT Awareness Month – Help HNF Spread the Word
At HNF we have dedicated our lives to raising awareness about CMT, so we’d like to spend the month sharing what we’ve learned
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases.
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases.
Joseph Torello: HNF Supporter and lives daily with CMT
Joe is an active member of Team CMT and we appreciate all he does for HNF. He has been busy performing, raising awareness and exercising for a cure! While Joe was performing The Music Man at Philadelphia’s Walnut St. Theatre
3. Host "Your Own" Event
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more! Choose from one of our past events below and email [email protected] for details, or submit your own!
Past events:
- Spin for a Cure
- Poker Night
- Set Sail for CMT
- Card Party
- Golf Outing
- Go-kart Party
- Cocktail Party
- Bake Sale
- Clay shoot
- Paint Night
- Gala & Auction
Submit your own Event!
Posts related to events and Team CMT Members
From our Blog
Special Events
My last month in numbers
It has been entirely too long since I’ve updated my blog and so much has happened since late April. I thought I would share some info on what I’ve been up to since my last post on April 29th
It’s probably nothing
Blog – I’m taking on my biggest challenge yet this weekend, it is the 3 Mountain 3 State Challenge in Chattanooga, TN.
Work, Ride, Eat, Sleep, Repeat…
One of the things that keeps my motivation up is almost every time I go on a ride I set new personal records on the same segments that I ride weekly.
March 29, 2015: OK…Now What?
January 15th 2015. That was the day I got my official invite to the race, that was the day of no turning back, that was the day I realized I was going to riding my bike a lot this spring and summer, a whole lot!
Bike NY Spotlight: Kristin Gelzins
I am signing up for my VERY FIRST Five Boro Bike Tour. I need your help to find a cure for CMT. Please consider donating to my fundraising page to help me, my family and everyone living with CMT
Team CMT Takes on the Bermuda Triple Challenge
Meet Team CMT member Bill Morgan. Bill and Liz (his wife) recently ran three races back to back in Bermuda for Team CMT.
Saturday April 18, 2015: Jillian’s Cure SUPERHERO 5K
Jillian’s Cure SUPERHERO 5K
Saturday, April 18, 2015
at 7:00am
111 Maiden Lane
Lexington, SC 29072
Sunday May 1, 2016: 2016 TD Bank Five Boro Bike Tour
HNF is thrilled to have been chosen for the fifth year as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour.
Wednesday, September 17th 7-8:30pm EST for a “Rare Neuropathies” Facebook Chat
FACEBOOK CHAT: “Rare Neuropathies: Getting Diagnosed, Getting Help”
WHEN: September 17, 2014 (7-8:30 p.m. EST)
WHERE: www.facebook.com/NeuropathyAssociation
Join Team CMT – Be a part of finding a cure!
You can join us, and truly make a difference. Register to be a Team CMT member and you’ll be part of an international effort to change the future for those living with CMT.