Jillian’s Cure SUPERHERO 5KSaturday, April 18, 2015
at 7:00am
111 Maiden Lane
Lexington, SC 29072
Jillian will lose her vision and hearing without a cure–put on your SUPER HERO costumes as we Save Children with Autosomal Dominant Optic Atrophy!
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
On Saturday, April 23, 2016, local caped crusaders joined Jillian for the 2nd Annual Super Hero 5K to help find a cure for Autosomal Dominant Optic Atrophy (ADOA). Over 200 people joined in on the fun of walking or running for a great cause.
Come join us on April 23, 2016, for Jillian’s Cure Super Hero 5K event in Columbia, SC. Jillian’s Cure was founded by Carolyn Nava, after her daughter Jillian was diagnosed with Optic Atrophy/Optic Neuropathy: a rare inherited neuropathy with no effective treatments or cures.
Optic neuropathy is one of the symptoms of a less common form of Charcot-Marie-Tooth disease known as CMT6.
FACEBOOK CHAT: “Rare Neuropathies: Getting Diagnosed, Getting Help”
WHEN: September 17, 2014 (7-8:30 p.m. EST)
WHERE: www.facebook.com/NeuropathyAssociation
Join us November 7, 2014 at A Hollywood Affair to raise money and awareness to fund research for Autosomal Dominant Optic Atropy (ADOA).
Jillian is battling this disease, which involves vision loss, hearing loss, disturbances in the nerves used for muscle movement and sensation, and muscle weakness.
Dress like your favorite celebrity to have your moment on the Red Carpet!
Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.
Holiday Shopping Benefit – Shop Till You Drop
Hereditary Neuropathy is participating in the Americana Manhasset’s Champions for Charity®. From Thursday, December 4 through Saturday, December 6, over 70 participating Americana Manhasset and Wheatley Plaza stores will donate 25% of designated pre-tax purchases.
Your donation will go to critical research that will help cure Charcot-Marie-Tooth (CMT), a progressive neuromuscular disease.
In general, the collection, analysis and dissemination of data on disease progression and patient responses to long-term disease management strategies in registries represents a valuable way to improve understanding of the disease and keep medical professionals up to date on the latest advances.
I registered through groupon under my mother’s credentials. How do I ensure that I, Travis Cooper, will be the participant? I have the receipt, but it is under her name. She will not be participating.
Thanks,
Travis Cooper
Hi Travis,
When you register with Groupon didn’t they give you a link to register on our webpage with your Groupon Code? Please feel free to email if need be. [email protected]