The Hereditary Neuropathy Foundation (HNF) is thrilled to partner with B East Amgansett, NY and The Breakwater Yacht Club, Sag Harbor, New York, for our Fifth Annual Spin for the Cure. There will be two 45 minute sessions. Following the Spin we will have a night of fun! Our evening will be filled with food, drinks, friends, raffles and lots of fun!
Watch the video from last year to get ready to spin!
Michael Watkins will participate for the 2nd time in the Leadville Trail 100 MTB race on August 14, 2022, in Leadville, CO.
Jillian’s Cure SUPERHERO 5K
Saturday, April 18, 2015
at 7:00am
111 Maiden Lane
Lexington, SC 29072
FACEBOOK CHAT: “Rare Neuropathies: Getting Diagnosed, Getting Help”
WHEN: September 17, 2014 (7-8:30 p.m. EST)
WHERE: www.facebook.com/NeuropathyAssociation
Join us November 15, 2014 in Ft. Lauderdale for an Havana Nights Fundraiser to raise money and awareness to fund research for CMT Type 6.
Holiday Shopping Benefit – Shop Till You Drop
Hereditary Neuropathy is participating in the Americana Manhasset’s Champions for Charity®. From Thursday, December 4 through Saturday, December 6, over 70 participating Americana Manhasset and Wheatley Plaza stores will donate 25% of designated pre-tax purchases.
Your donation will go to critical research that will help cure Charcot-Marie-Tooth (CMT), a progressive neuromuscular disease.
In general, the collection, analysis and dissemination of data on disease progression and patient responses to long-term disease management strategies in registries represents a valuable way to improve understanding of the disease and keep medical professionals up to date on the latest advances.
Author: A Passionate Plate
Serves: 8 sliders
A great way to use up leftover holiday turkey. If hazelnuts are not available, use another nut of your choice, such as almonds, walnuts or pecans.
Author: A Passionate Plate Serves: 10-12
Ingredients
5 lbs. russet style potatoes, peeled and cut into 2″ chunks
8 oz. cream cheese, softened
1 cup sour cream
salt & pepper (white or black) to taste
4 Tbsp. butter
cups each diced carrot, celery, onion and potato
3 Tbsp. olive oil
¼ cup flour
2 quarts chicken stock
1 lb. bag frozen corn
4 cups cooked turkey, diced
3 Tbsp. soy sauce
3 cups shredded cheddar cheese
1 can evaporated skim milk
1 tsp. crushed red pepper
2 Tbsp. fresh thyme, chopped
Would like imfo for my friend who is 41 n needs help I am trying to research anything to help.