PARTNER WITH US

HCPs/Centers of Excellence

HNF is committed to providing medical professionals with the resources and tools to help all patients with CMT.
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CMT Centers of Excellence

The Hereditary Neuropathy Foundation (HNF) announces its national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community.

The designated COEs demonstrate strengths in providing excellence in clinical care and research and will collaborate with HNF to expand their role as CMT/IN patient community hubs for clinical care, community engagement, research, and training/education.

HNF strongly believes CMT patient care and prognosis could be significantly improved if health care practitioners (HCPs) could demonstrate and enhance their proficiency in managing CMT patient care.

Director, HNF Center of Excellences

Florian P. Thomas MD, MA, PHD, MSC

Director, Hereditary Neuropathy Center, Hackensack University Medical Center, Founding Chair & Professor, Department of Neurology, Hackensack Meridian School of Medicine

Science and medical care are critical for helping our patient community have access to the best options for maintaining function and mobility.

There are wonderful CMT experts at our CMT Centers of Excellence, a hub for clinical care, community engagement, and innovative research. The CMT experts span resources from treating pain, offering corrective foot and hand surgical procedures, educating patients on the many options available for AFO’s (leg braces), information on genetic testing, PT, OT, and what research or clinical trials may be available to patients.

HNF has an application process with set terms for becoming a Center. We expect our partners to provide excellent patient care and to host a Patient-Focused Summit or CMT-Connect Webinar. If the site is a research Center, the opportunity to receive funding from us for pre-clinical or clinical research, including participating as a clinical trial site for our industry partners. Some of our lead sites have members that sit on the TRIAD Council or GRIN Advisory Council.

Are you a Healthcare Provider?

Enroll in our Healthcare Provider Directory!

The Healthcare Provider (HCP) Directory lists hundreds of CMT specialists and is organized by geographic region and specialty. Our goal is to offer people with hereditary neuropathies a resource where they can find medical specialists with unique expertise and familiarity in caring for people with hereditary neuropathies. Some of our providers offer virtual visits through telemedicine.

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Arizona

Barrow Neurological Institute

240 W. Thomas Rd. Suite 400

Phoenix, AZ 85013

602.406.6262 (O)

602.406.2565 (F)

Contact:

Coordinator: Felisha Tso

602.406.8144 (O)

[email protected]

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Arkansas

Arkansas Children’s Hospital *Pediatric Center of Excellence
1 Children’s Way
Little Rock, AR 72202-3591

Contact
Dr. Aravindhan Veerapandiyan
Assistant Professor of Pediatric Neurology
Director Comprehensive Neuromuscular Program
Email: [email protected]
Primary Care Appointments:
501-364-1850
Specialty Care Appointments:
501-819-3520

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Colorado

Children’s Hospital Colorado

*Pediatric Center of Excellence

13123 E 16th Ave,

Aurora, CO 80045

Contact

Hattie Foster

Clinic Schedulers: 720-777-2806

[email protected]

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Connecticut

Hospital for Special Care
Charles H. Kaman Neuromuscular Center
2150 Corbin Avenue
New Britain, CT 06053

Contact:

Angel Preece, RN

Phone: 860-612-6305

Fax: 860-612-6304

Email: [email protected]

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California

Cedars-Sinai Medical Center

127 S. San Vicente Blvd.

Advanced Health Sciences Pavilion, A6600

Los Angeles, CA 90048

Contact:

CMT Clinic line: 310-423-4268

Email: [email protected]

Stanford Neuroscience Health Center Neuromuscular Clinic

213 Quarry Road, 1st Floor

Palo Alto, CA 94304

Contact:

Dr. Robert Fisher or Dr. John Day

Phone: 650-723-6469

Email: [email protected]

UCLA Department of Neurology

300 Medical Plaza, Suite B200

Los Angeles, CA 90095

Contact:

Dr. Anasheh Halabi

Telephone: 310-794-1195 (note: request to be scheduled with Dr. Halabi)

Fax: 310-794-7491

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Illinois

Ann and Robert H. Lurie Children’s Hospital of Chicago *Pediatric Center of Excellence

225 East Chicago Avenue
Chicago, IL 60611

Contact:
Dr. Bridget McGowan
Phone: Call 1-800-KIDS-DOC for an appointment.
If there is already a diagnosis of CMT, call 312-227-4471

 

Rush University

600 S. Paulina Street

Chicago, IL 60612

Contact Person:

Ryan Jacobson MD, Neurology

Rush University Call Center: 312-942-5936

Appointments: 312-942-5936

 

UI Health Hospital and Health Sciences System

Outpatient Care Center

1801 W. Taylor St., Suite 4E

Chicago, IL 60612

Appointments

Phone: 312-996-4780

Fax: 312-413-7716

Contact Persons

Dr. Charles Abrams, Neurology

Linda Querry, RN

Email: [email protected]

Phone: 312-355-0510

Jessie Alverio (Clinic Coordinator)

Email: [email protected]

Phone: 312-996-4780

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Kansas

University of Kansas Medical Center
Landon Center on Aging
3599 Rainbow Boulevard
Mailstop 2012
Kansas City, KS 66160

Contact:

Andrew Heim

Phone: 913-945-9926

E-Mail: [email protected]

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Florida

University of Florida (UF) Health
3009 Williston Road
Gainesville, FL 32608

Contact:
Melissa Hines
Phone: 352-294-5000
E-Mail: [email protected]

University of Miami
Professional Arts Center (PAC)
1150 NW 14th Street, 6th Floor
Miami, FL 33136

Contact:

Keyla Hernandez
Phone: 304-243-3100
E-Mail: [email protected]

AdventHealth Neurology at Winter Park
1573 W Fairbanks, Ste 210
Winter Park, FL 32789

Contact:
Nivedita Jerath MD, MS
Phone: 407- 303-6729
E-Mail: Orl.neuromuscular.medicine@adventhealth.com

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Massachusetts

Brigham and Women’s Hospital
Department of Neurology
75 Francis St, Tower 5th Floor
Boston, MA 02115

Contact:
Kristen Roe
Phone: 617-525-6763
E-Mail: [email protected]

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Michigan

University of Michigan
2205 Commonwealth Blvd
Ann Arbor MI 48105

Contact:
Keianna Banbury
Phone: 734-763-2554 for appointments

Email: [email protected]
Website: https://www.uofmhealth.org/

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Missouri
Saint Louis University School of Medicine
SLUCare Academic Pavilion
1008 S. Spring
Saint Louis, MO, 63110

Contact:
Research: Molly Labrier
Phone for Appointments: (314) 977-6177
E-Mail: [email protected]

MU Health Care:
Department of Neurology
1020 Hitt Street
Columbia, MO 65212

Contact:
Dr. Karim Salame and Dr. Vovant Jones
Phone: 573-882-1515

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New Jersey

Goryeb Children’s Hospital *Pediatric Center of Excellence

55 Madison Avenue
Morristown, NJ 07960

Contact:
Nuratullahi Agboola
Phone: 973-971-5700
email: [email protected]

Hackensack University Medical Center
Neuroscience Institute
650 From Road, Suite 506
Paramus, NJ 07652

Contact:
Dr. Florian Thomas
Phone: 551-996-8100
Email: [email protected]

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North Carolina

Dr. Rebecca Traub

University of North Carolina
194 Finley Golf Course Road, Suite 200
Chapel Hill, NC 27517

Contact:
For clinical appointments
Phone: (984) 974-4401
Referral Fax: (984) 974-2285

Dr. Urvi Desai

Atrium Health Neurosciences Institute-Charlotte
1010 Edgehill Road North
Charlotte, NC 28207

Contact:
For clinical appointments:
Phone: (704)-446-1900
Referral Fax:
Ashley Clyburn
(704)-355-5650

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New York

Columbia University
Department of Neurology
710 West 168th Street
New York, NY 10032

Contact:
For clinical appointments
Phone: 212-305-0405
For research studies
Phone: 212-305-6035, ask for Raisy Fayerman
Email: [email protected]

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Oregon

Oregon Neurology

Michael Balm, MD
1 Hayden Bridge Way
Springfield, OR 97477

Contact: Jody Nichols

Phone: 541-868-9430

Fax: 541-868-9450
Email: [email protected]

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Texas

Austin Neuromuscular Center
3901 Medical Parkway, Ste. 300
Austin, TX 78756

Contact:
Yessar Hussain, MD
Phone: (512) 920-0140
Website: https://austinneuromuscle.com/contact/

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Washington

Providence St. Luke’s Physiatry and Neuromuscular Center
715 South Cowley Street, Suite 228
Spokane, WA 99202

Contact:
Dianna Russell
Phone: 509-473-6706
Email: [email protected]

University of Washington Medical Center

Dr. Nassim Rad

959 NE Pacific Street
Seattle, Washington 98195

CMT Scheduler Phone Number: 206.598.0058

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Canada

University of Toronto
Hernan D. Gonorazky, M.D

A primary healthcare provider must provide a referral to the Neuromuscular Clinic at SickKids. Once that has been obtained an appointment can be arranged.

CME Education for Credits

View The AANEM Charcot-Marie-Tooth Continuing Education Course for a detailed look at this CMT continuing education course. 

Participants will acquire skills to:

(1) Diagnose CMT based on common symptomology;

(2) Discuss work-up and surgical treatment options for the very young to adults;

(3) Identify potential therapies and bracing that may improve quality of life for those diagnosed and their care-givers.

If you would like to become an HNF Center of Excellence, apply below.

If no, would you be interested in participating in a clinical trial?

Is your center multidisciplinary?

Do you see Adults/Pediatrics?

As an HNF Center of Excellence, we ask that you regularly disseminate our CMT materials to your patients. Are you willing to do this?

Do you have an interest in co-hosting an HNF CMT-Connect workshop and/or Patient-Centered Summit at your site?