Our CEO

Allison Moore founded the Hereditary Neuropathy Foundation upon learning of her sudden onset of CMT, which was brought on after she received a chemotherapy agent (Vincristine) which is toxic and contraindicated for people with CMT or for those with a family history of CMT. After this frightening and life-changing experience, Allison made a passionate commitment to changing the outlook for people living with CMT.

Since 2001, HNF has grown exponentially and spread its reach worldwide. In 2010, the Centers for Disease Control and Prevention (CDC) awarded a multi-year grant (UDD000713) to HNF to create a National CMT Resource Center. This cooperative agreement resulted in comprehensive resources, essential information, and educational materials targeted to patients, caregivers and medical professionals.

There has been incredible research progress since 2007 when HNF formed the Therapeutic Research In Accelerated Discovery (TRIAD) program. Allison leads the organization with one goal in mind: to support CMT patients and their families and to ensure that one day there are treatments and cures for CMT.