HNF TRIAD Academic Partner Connecticut Children’s Publishes Results of CMT Pediatric Natural...
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HNF Awarded 2023 Health Equity in RARE Impact Grant
HNF Awarded 2023 Health Equity in RARE Impact Grant For Spanish CMT PSA Awareness Campaign with Diagnosis & Patient Care Toolkit. The Hereditary Neuropathy Foundation is thrilled to announce that we are a recipient of the Global Genes Health Equity in RARE Impact Grant!
Cambridge-led natural history study identifies MTRFR/C12orf65 deficiency to improve diagnosis and therapy development
This research will potentially show a method that may be quicker and better at identifying...
Hereditary Neuropathy Foundation Re-Launches One-of-A-Kind Patient Registry for Charcot-Marie-Tooth Disease Research
Hereditary Neuropathy Foundation Re-Launches One-of-A-Kind Patient Registry for...
CMT-Associated Genes and Their Related Subtypes: The Definitive Guide
Kenneth’s groundbreaking book, CMT-Associated Genes and Their Related Subtypes: The Definitive...
Charcot-Marie-Tooth Virtual Support Group
The support group offers time to participate in a variety of both educations & open discussion meant to help everyone engage with others on similar journeys.
emBRACE it™ Episode #43
How do we honor the inevitable grief that comes with disability and establish healthy boundaries...
CMT Safe Space – Best Shoes for High-Arched Feet?
CMT Safe Space - Best Shoes for High-Arched Feet? Thanks to all those who joined last week! Check...
CMT Highlight Reel: How does CMT data drive research using GRIN?
Kenneth Raymond provides an overview of why sharing CMT symptoms in GRIN is so important!
CMT Beyond Social Media: What is CMT Safe Space!
When searching for support and answers to CMT questions, social media can be very beneficial....
Hypotonia & CMT
Hypotonia, or low muscle tone, can be caused by a variety of factors, including genetic conditions like Charcot-Marie-Tooth (CMT) disease
Interested in driving CMT research forward? We need you!
Interested in driving CMT research forward? Watch our new 7-min GRIN Demo video explaining the steps in creating and updating your GRIN account!
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