Kristin is redefining what it’s like to live with Charcot-Marie-Tooth disease. Determined to be seen for who she is, rather than her disability, Kristin faces the daily challenges of CMT head on with grace, dignity, and perseverance.
Kristin’s story not only shows us how she is redefining herself, but how she is giving others living with CMT the courage to do the same. Let’s learn more about Kristin and how she’s breaking down the barriers of CMT.
Raising global awareness of inherited neuropathies is a daily challenge we face head on at The...
Holiday Shopping Benefit – Shop Till You Drop Hereditary Neuropathy Foundation is participating...
Charity Card Party Brunch and Boutique Please join us January 29, 2016 at 10:30 at Broken...
Ed Moore, a Team CMT leader who is committed to spreading awareness of CMT with a pretty creative and bold fundraising strategy.
Come join us on April 23, 2016, for Jillian’s Cure Super Hero 5K event in Columbia, SC. Jillian’s Cure was founded by Carolyn Nava, after her daughter Jillian was diagnosed with Optic Atrophy/Optic Neuropathy: a rare inherited neuropathy with no effective treatments or cures.
Optic neuropathy is one of the symptoms of a less common form of Charcot-Marie-Tooth disease known as CMT6.
Awareness FBWhile Charcot-Marie-Tooth Awareness Month officially comes to an end today, the Hereditary Neuropathy Foundation’s commitment to spreading CMT awareness carries on every single day of the year.
Senator Gillibrand has graciously shown her recognition of Charcot-Marie-Tooth Awareness Month by sharing a letter about HNF’s mission, the importance of greater awareness, and the need for increased research and clinical trials
Patrick was an accomplished athlete in high school, participating in many sports and even boasting a 85mph fastball. But his deformed feet prevented him from running, eliminating any chance to pursue sports past high school.
All you have to do is snap a selfie with #SeptemberSelfieCMT in the photo and share it on all your social media pages.
it’s so important for you to join The Hereditary Neuropathy Foundation on all of our social media channels.
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