On October 23, 2015 the Victor New York Blue Devils Football boosters and coaching staff dedicated their first playoff game from their undefeated season to team manager Zach Houliares.
Blog Archive
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#GivingTuesday: Why Do We Give?
The Hereditary Neuropathy Foundation is proud and excited to kick off the charitable season with #GivingTuesday on December 1st. #GivingTuesday unites people across the world by sharing our capacity to care for and empower each other.
Do You Need Ideas For Shoes To Accommodate Your Braces?
Do you have difficulty finding stylish shoes other than sneakers that accommodate your braces?...
Does your Charcot-Marie-Tooth symptoms make dog ownership difficult?
Does your Charcot-Marie-Tooth symptoms make dog ownership difficult? Do you wear braces that make...
Champions For Charity: Helping Those Living With Charcot-Marie-Tooth
What if every purchase you make this holiday season could earn dollars for Charcot‐Marie‐Tooth...
Leg Braces, AFOs & CMT: Finding the Right Fit
Has the time come for leg braces? If so, there are a lot of options to find the right brace for...
Global Registry For Inherited Neuropathies: Your Questions Answered
Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.
Team CMT: Join The Movement & Make A Difference!
The holiday season is a great opportunity to make a difference for those living with...
#MyGivingStory
This November, the #GivingTuesday movement is running #MyGivingStory, a new storytelling contest...
#GivingTuesday December 1, 2015: Giving Back This Holiday Season
The Hereditary Neuropathy Foundation is proud to continue our support of #GivingTuesday. Come join us on December 1st and participate in this globally recognized movement of giving and philanthropy.
Tips For Living With Charcot-Marie-Tooth During The Holidays
CMT patients can give themselves the best opportunity to stay healthy and happy this holiday season with these helpful tips.
Neurotoxic Drugs & Charcot-Marie-Tooth Disease: What You Need To Know
CMT patients and their health care providers need to be aware about certain neurotoxic drugs that might worsen their neuropathy.
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Faces of CMT – Jaxson (7)
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Movement Is Medicine (17)
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PFDD Meeting 28SEP2018 (5)
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Bike New York (19)
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Spin-a-thon (7)
TCS New York City Marathon (7)
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