Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.
Blog Archive
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The Hereditary Neuropathy Foundation Announces New Partnership With Acetylon Pharmaceuticals To Explore Potential Therapies For Charcot-Marie-Tooth Disease
The Hereditary Neuropathy Foundation (HNF) is proud to announce a new partnership with Acetylon Pharmaceuticals, Inc., a leader in the development of selective histone deacetylase (HDAC) inhibitors for enhanced therapeutic outcomes.
Hot Topic In HNF’s Inspire Online Support And Discussion Community: Hearing Loss And Charcot-Marie-Tooth
Our shared stories help show a connection between CMT and the symptoms we experience, such as hearing loss.
Q&A on Genetic Testing with Stephanie Gandomi, M.S., LCGC, of Invitae
HNF gets answers to questions on what is genetic testing, cost, family history, what happens to the data.
H.E.L.P. Card Party CMT2A Fundraiser
HNF is proud to report that over $36,000 was raised for research for CMT2A at this annual event!
Big Island Circumnavigation For Charcot-Marie-Tooth Awareness
Jennifer Decker has Charcot-Marie-Tooth and is set to embark on the first Big Island Circumnavigation.She won’t let CMT stop her for her dreams.
Symptoms & Charcot-Marie-Tooth Disease
Kuddos to our Inspire member HMBSusan! She initiated this important conversation in our Inspire Support Community. When HNF partnered with the Inspire Community, our mission was to encourage conversations just like this one.
How Meditation Can Benefit Charcot-Marie-Tooth Patients
Meditation is an ancient mind and body practice that can offer many benefits for those living with CMT and INs.
Living with Charcot-Marie-Tooth: Leg Braces & Air Travel
CMTers who use leg braces share their tips and best advice for air travel in our CMT Inspire Community.
We’re Here To Help: The Hereditary Neuropathy Foundation’s Healthcare Provider Directory
The Hereditary Neuropathy Foundation is thrilled to announce the launch of the first online health care provider directory that has ever been offered to this community to include comprehensive testing to certify health care professionals (HCPs).
Ride For Charcot-Marie-Tooth Awareness & Research: 2016 TD Bank Five Boro Bike Tour
The Hereditary Neuropathy Foundation (HNF) is thrilled to participate as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour for the fifth year in a row. This is an extraordinary event where participants bike through all five New York boroughs to help increase awareness and raise dollars to fund Charcot-Marie-Tooth (CMT) research.
Keep Track Of Your Health Information With Medicare’s Blue Button
Medicare is providing better access to your health information with their expanded Blue Button feature.
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