The HNF 2018 Patient-Centered Behavioral Health Summit was one-of-kind: HNF launched a new curriculum.
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Exciting News For The CMT Patient Community
Exciting news for the CMT patient community with the first potential treatment ever!
PFDD Meeting Sessions
Welcome and Opening Remarks Overview: What is CMT? - Michael Shy, MD Overview: What is CMT? - Dr....
HNF & Athena Diagnostics Form Strategic Alliance
They will collaborate on research and provide access to genetic testing for CMT.
HNF On The Road
HNF presenting and attending prestigious conferences worldwide.
HNF Launches Online Clinical Study
HNF launches GRIN with 4 online clinical studies that are important as we continue with our therapy development pipelines.
A Letter From HNF’s CEO/Founder
2018 was a pivotal year for the Hereditary Neuropathy Foundation (HNF) and the entire Charcot-MarieTooth (CMT) Community.
HNF Partners with True Reply, the Future of Data Collection: Voice Activated Technology (VAT)
True Reply’s Voice Activated Technology is an accessible and innovative new platform that captures the patient’s experience with CMT in their own words.
The Externally-led Patient-Focused Drug Development (PFDD) Meeting Was A Huge Success!
HNF successfully executed the Externally-led PFDD Meeting for the FDA on September 28th, 2018.
How One Rare Disease Organization Used Technology to Provide Greater Patient Insight to FDA
Daniel Levine from Global Genes speaks with Allison Moore on the Global Genes Rare Cast.
CMT & Exercise: Made for Modus
Get the most out of your exercise! Join Estela and expert, Chris Dito (CMT patient and biomechanics specialist) as they discuss the dos and don’ts of exercising.
Child Neurology Foundation (CNF) Leads a Collaborative Peer Support Work Group
HNF was honored to be chosen by the Child Neurology Foundation as the one of 11 advocacy groups.
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Canine Companions (5)
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TCS New York City Marathon (7)
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