CMT-Connect hosted its first webinar on the popular topic of Cannabis this past April.
Blog Archive
Blog
Swimming Towards Success, Jamal Hill
The Los Angeles native was a natural born swimmer, and has continued his aquatics career throughout his life.
HNF is Now Recruiting Patients for New Gene Therapy Research Projects
HNF has selected its first three types of CMT based on their potential for success…and we need your help!
Orphan Disease Center Million Dollar Bike Ride Pilot Grant Program
The ODC MDBR Pilot Grant Program provides a one‐year grant to support research related to a rare disease represented in the 2019 Million Dollar Bike Ride.
Christina Chambers Ability360
Meet Christina Chambers, dancer, adventurer, advocate and Abiitity360 Instructor!
Align with Happiness
How do we tap into our joy, peace and best selves during a pandemic?
Ability360 CMT-Connect Webinar
We speak with Ability360 Program Manager, Brielle Carter about her adaptive sports and recreation center specially designed for people with disabilities.
Mini Film “Date-Able”
What goes through the mind of a woman living with Charcot-Marie-Tooth as she braves the world of dating?
Help Support HNF with the RoundUp app
HNF has partnered with an app called RoundUp that allows users to donate the change to support CMT research.
HNF Announces The Second Pediatric Center of Excellence for CMT
HNF’s 2nd Pediatric Center of Excellence for CMT is located at the Ann and Robert H. Lurie Children’s Hospital of Chicago.
What Is Fast Track?
The FDA has awarded Fast Track designation to two drugs currently in development for CMT.
Movement is Medicine™ Summit
HNF is excited to announce the Movement is Medicine™ Summit, being held at Ability360 Sports & Fitness Center in Phoenix, AZ, on November 8-9.
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TCS New York City Marathon (7)
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