HNF Launches the Ultimate CMT Amazon Wish List
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“Grow or Mow” A Sheer Success!
Brandon, his wife, and Alana would host a virtual ‘Mow or Grow’ fundraiser with each $1 vote going towards CMT research.
HNF Welcomes New Board Member, Natalia Salejko
HNF Welcomes New Board Member, Natalia Salejko
New Center of Excellence Dr. Nassin Rad UW Medicine, Seattle, Washington
New Center of Excellence Dr. Nassin Rad UW Medicine, Seattle, Washington
When a Pandemic Hits… CMT’ers Adapt as Usual!
When a Pandemic Hits… CMT’ers Adapt as Usual!
Meet Addie “The Face of the CMT Medical Journal”
New Study Measures Progression of CMT1A Nerve Impairment
New Study Measures Progression of CMT1A Nerve Impairment
New Study Measures Progression of CMT1A Nerve Impairment
Interim Analysis Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’)
Study Shows Sustained Benefits of PXT3003 for Patients with Charcot-Marie-Tooth Disease Type 1A (‘CMT1A’)
Meet HNF’s Newest International Board Member, Natalia Salejko
Natalia, her family, and her growing team are laser-focused on finding a cure for CMT through aggressive fundraising through many channels.
Natural History Study Assessment of CMT patients to Support Virtual Clinical Studies
The goal of the project is to evaluate years of collected patient-reported data and to correlate the findings to specific cohorts to include genotype, phenotype and clinical features.
The Hereditary Neuropathy Foundation is excited to announce the Movement is Medicine™ Fitness Ambassador program!
We are excited to announce the launch of the Movement is Medicine™ Fitness Ambassador program, which will provide members weekly live classes that help increase their strength, balance, and overall fitness level.
Cannabis & CBD for CMT
Join our experts, Meg D’Elia & Brian Piper, PhD along with CMT patient panelists as they provide research, insight and personal experience on the topic of medical marijuana.
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