Save the Date: Friday January 29, 2016 Boca Raton, Florida to Benefit CMT Type 2

Update on NMD Pharma Clinical Trial

by Courtney | Nov 19, 2024 | Clinical Trials, CMT Type - CMT1A, CMT Type - CMT1B, CMT Type - CMT1X, CMT Type - CMT2A, CMT Type - CMT2C, TRIAD | 0 Comments

NMD Pharma Initiates Phase 2 Study of NMD670 in Patients with Charcot-MarieTooth Disease Type 1...

Seeking Participants for a New CMT Clinical Trial: A Chance to Help Advance Treatment

by Courtney | Oct 1, 2024 | Clinical Trials, CMT Type - CMT1A, CMT Type - CMT1X, CMT Type - CMT2A, TRIAD, TRIAD - Therapeutics | 0 Comments

Seeking Participants for a New CMT Clinical Trial (for the US only): A Chance to Help Advance...

2024 CMT Roadshow Coming to a City Near You?

by Courtney | Mar 26, 2024 | CMT Type - CMT1A, CMT Type - CMT1B, CMT Type - CMT1X, CMT Type - CMT2A, CMT Type - CMT2C, CMT Type - CMT4A GDAP1, CMT Type - CNTNAP1, CMT Type - GAN, CMT Type - HDAC6, CMT Type - HNPP, CMT Type - MTRFR-C12orf65, CMT Type - SORD Deficiency, Research, Types of CMT, Upcoming Events | 0 Comments

Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank

Can Existing Drugs Treat CMT?

by Courtney | Oct 13, 2022 | CMT Type - CMT2A, Rarebase, Research and Critical Trials, Webinars - Research and Clinical Trials | 1 Comment

HNF, in partnership with Rarebase, is leading the charge in the first-ever research initiative to tackle multiple types of CMT in one project using its tech-enabled drug discovery platform called “Function.”

Calling all Grandparents (and Parents)!

by Estela Lugo | Jan 9, 2020 | CMT Type - CMT2A, Faces of CMT - HELP Fund | 0 Comments

Join Iris Adler as she continues fundraising for her grandson and the many others living with Charcot-Marie-Tooth Type 2A

StarWise Therapeutics & HNF Form A Strategic Alliance to Bring a NextGen HDAC6 Drug Therapy to CMT2A (MFN2) Patients

by Courtney | Dec 29, 2018 | Burke Insitute, Faces of CMT - HELP Fund, Research | 0 Comments

HNF has been committed to funding HDAC inhibitor research since 2014.

January 27, 2017 – Bridge/Brunch Fundraiser

by Courtney | Dec 5, 2016 | CMT Type - CMT2A, Faces of CMT - HELP Fund | 4 Comments

Charity Card Party Brunch and Boutique

Please join us January 27, 2017 at 10:00 at the Broken Sound Country Club, Boca Raton Florida. Join us for an exquisite brunch and card party to benefit the H.E.L.P fund/HNF at Broken Sound Country Club in Boca Raton, FL.

H.E.L.P. Card Party CMT2A Fundraiser

by Courtney | Feb 10, 2016 | CMT Update, Faces of CMT - HELP Fund | 0 Comments

HNF is proud to report that over $36,000 was raised for research for CMT2A at this annual event!

A New Mouse Model for Charcot-Marie-Tooth (CMT2)

by Courtney | May 27, 2015 | CMT Update, Faces of CMT - HELP Fund, Research | 0 Comments

We were recently informed that The Jackson Laboratory (JAX, a nonprofit biomedical research institution headquartered in Bar Harbor, Maine) had taken delivery and will be distributing a newly generated CMT-related mouse model. The new model expresses mutant mitofusin 2, a mitochondrial membrane protein involved in mitochondrial fusion and regulation of vascular smooth muscle cell proliferation.

Sixth Annual Card Party Brunch

by Courtney | Mar 10, 2015 | CMT Update, Faces of CMT - HELP Fund | 0 Comments

On January 23, 2015 dedicated H.E.L.P. (Help Elliot Live Proud) Fund supporters participated in the 6th Annual Card Party Brunch and Boutique at Broken Sound County Club, Boca Raton, Florida. Record numbers flocked into the picturesque country club for a day filled with gourmet food, raffles, cards and a silent auction! HNF Board member Iris Adler increased this event by 50 new faces this year!

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