The New York Times recently published an article about those living with Charcot-Marie-Tooth disease. Several members of the Hereditary Neuropathy Foundation were featured, including Allison Moore, Matt Downing and Bernadette Scarduzio. Not only was there an article by Tara Parker-Pope, but an interactive feature allows us to “listen to the voices of CMT.” Listen now!
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.
Join Brett Gray & Bernadette Scarduzio in their mission to bring accessibility to beaches across the US!
Therma Pool therapy session and demo as they discuss the benefits of aquatic exercise for CMT and more!
Bernadette Scarduzio – a CMT patient and advocate! I reside in Drexel Hill, PA with my 2 dogs.
Cast: Bernadette Scarduzio
Bernadette Scarduzio was born with the most common inherited disease that no one has ever heard of: Charcot Marie Tooth (CMT) syndrome. CMT is the number one hereditary neuropathy in the world, affecting 1 in 2,500 people or nearly 2.6 million worldwide.
In mid-October 2012, I had the opportunity to interview Bernadette Scarduzio (Bern). She is a lovely young woman who suffers from Charcot-Marie-Tooth
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.”
my mother and all of her sisters had CMT as of now I am not showing any signs of the disease, but I do have a sister that is.
I was just sitting at my computor and typed in”CMT RESEARCH” and was totally blown away by the information provided and the number of people who are affected by CMT…I have CMT but only in my lower extremeties, my daughter has the same problem and my grandson also has CMT. I have learned to live with the loss of strength and balance by having an orthotic fitted to fit under my feet and extend up my legs just below my knee which allows me to function with the use of two wrist crutches which compensates for the lack of balance…I am hoping to find someone near me in the midwest to communicate with to discuss our common problem. I would appreciate any help you can provide in finding some one who has the same problem…….Louie Cowan of Cherry Valley, Illinois..