CMT Updates
Read about CMT updates and the latest in CMT research. Access archives since 2014.
Related Blog Posts
The Un-selfie4CMT Campaign!
HNF introduces our latest initiative to reach millions of people worldwide and raise money for CMT research using Text2give.
Spread Awareness – Visit California Pizza Kitchen During September: CMT Awareness Month
Want to help fund research and spread awareness? Well here is your chance and mingle with friends and family while you dine!
Building Awareness on CMT and Supporting the Patient Community – HNF Announces Support from Pharnext
HNFpharnext recently entered into a partnership with the French biopharmaceutical company, Pharnext, to help raise awareness of Charcot-Marie-Tooth (CMT) disease and support the CMT patient community through several initiatives. Building awareness is key! Pharnext’s support will assist HNF in distributing HNF’s CMT Update quarterly newsletter, enhancing the Global Registry for Inherited Neuropathies (GRIN), setting up activities for CMT September Awareness Month in the US and strengthening the CMT Inspire Community.
Lyme Disease and Charcot-Marie-tooth: What You Need to Know
Sufferers of Lyme Disease and Charcot-Marie- Tooth often share many commonalities about their disease
WEDDING FOR A CAUSE!
Cheryl and Robert made the altruistic decision to ask their wedding guests to make a donation to HNF in lieu of traditional gifts.
Join Team CMT – Be a part of finding a cure!
You can join us, and truly make a difference. Register to be a Team CMT member and you’ll be part of an international effort to change the future for those living with CMT.
Meet Elizabeth Stenz, Team CMT Member
Her sister was diagnosed with CMT when she was 14, and since then her and many family members have become very familiar with the disease and have worked to raise awareness.
In Memoriam
The HNF family has lost two great people this summer: Franklin G. Downing Sr. (father of board member Matthew Downing) and George G. Gatta (father of board member Kathleen Zappola).
Help us answer questions that your doctors and the CMT Research Community aren’t too sure about.
As Chief Science Officer of HNF, it is his responsibility to oversee the success of our TRIAD research program in which we fund translational research (pre-clinical and clinical), projects. HNF’s goal is to expedite the research process from bench to bedside.
Introducing A New Scientific Advisory Board Member
Nadia Litterman, PhD is Collaborations Director at Collaborative Drug Discovery (CDD), where she aims to identify and develop collaborations for drug discovery using CDD’s innovative informatics technologies.