CMT Updates
Read about CMT updates and the latest in CMT research. Access archives since 2014.
Related Blog Posts
Meet Molly: A True CMT Warrior
Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.
The Hereditary Neuropathy Foundation Announces New Partnership With Acetylon Pharmaceuticals To Explore Potential Therapies For Charcot-Marie-Tooth Disease
The Hereditary Neuropathy Foundation (HNF) is proud to announce a new partnership with Acetylon Pharmaceuticals, Inc., a leader in the development of selective histone deacetylase (HDAC) inhibitors for enhanced therapeutic outcomes.
Hot Topic In HNF’s Inspire Online Support And Discussion Community: Hearing Loss And Charcot-Marie-Tooth
Our shared stories help show a connection between CMT and the symptoms we experience, such as hearing loss.
Q&A on Genetic Testing with Stephanie Gandomi, M.S., LCGC, of Invitae
HNF gets answers to questions on what is genetic testing, cost, family history, what happens to the data.
H.E.L.P. Card Party CMT2A Fundraiser
HNF is proud to report that over $36,000 was raised for research for CMT2A at this annual event!
Update on Michael Watkins – Team CMT Member
Michael Watkins completed the Leadville Trail 100 MTB race on August 15, 2015 in Leadville, CO. The trail race is widely considered one of the toughest mountain biking races in the country.
September is Charcot-Marie-Tooth (CMT) Awareness Month
In September, HNF has many ways to participate in our ongoing efforts to find a cure for CMT. Here are a few exciting and fun ways for you to join us in our efforts to raise awareness and funds
HNF Sponsors 2015 Peripheral Nerve Society Conference in Canada
Allison Moore, HNF CEO, and Joy Aldrich, HNF Advocacy Director, represented HNF as sponsors at this important conference, which was held in Chateau Mont Sainte Anne, Canada, from June 27 – July 2
Introducting HNF’s Health Care Providers Directory
The Hereditary Neuropathy Foundation (HNF) has a new initiative aimed at identifying expert Health Care Providers (HCP) for the CharcotMarie-Tooth (CMT) community.
HNF Physician Spotlight: Dr. Wayne Berberian
Dr. Wayne Berberian is a specialized orthopedic surgeon who repairs complications of the foot and ankle.