CATEGORIES: CMT | Community

A Recipe for CMT Treatments: Grateful for You This Thanksgiving

by | Nov 26, 2024 | 0 comments

This Thanksgiving, we’re filled with gratitude for YOU. Your support, encouragement, and belief in our mission make everything we do at the Hereditary Neuropathy Foundation (HNF) possible.

As we reflect on the progress we’ve made this year, it reminds us of a recipe—one that combines the perfect ingredients to drive treatments. Here’s a taste of what we’ve been cooking up together: 

  • 1 Hearty Ladle of GRIN Foundation: Begin with a robust base of patient data from the Global Registry for Inherited Neuropathies (GRIN), providing the perfect consistency to guide research and connect families with vital resources.
  • 2 Heaping Tablespoons of Partnerships (TRIAD): Gently fold in collaborations with biotech, researchers, and advocacy groups, creating a unified mission with just the right texture for success.
  • 3 Pinches of Innovation: Sprinkle in digital technology, including BioSensics’ wearable devices, offering a dash of real-time insights to de-risk and accelerate clinical trials and treatments.
  • 1 Generous Scoop of Biobank Power: Add a rich collection of CMT biospecimens, fueling groundbreaking research and biomarker discovery with every spoonful.
  • A Dash of FDA Regulatory Engagement: Mix in careful collaboration with regulators, ensuring the recipe aligns with standards for clinical trial readiness and approvals.
  • 3 Cups of Community Support: Stir in love and encouragement from families, patients, and supporters, binding all the ingredients together into something truly transformative.

Each ingredient in this recipe represents the heart of our work and the passion of our incredible community. You’re the secret ingredient that makes it all possible! 

From all of us at HNF, we wish you and your loved ones a joyful and peaceful Thanksgiving. Thank you for being such an essential part of our journey. 

P.S. Ready to stir up even more progress? Join GRIN, contribute to the biobank, or make a year-end gift to fuel these life-changing initiatives.

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