Jaxson’s Clayshoot for Mito CMTs Among the various forms of CMT, mitochondrial CMT (Mito-CMT)...
Blog Category
Pediatrics & CMT
Total posts in Category: 10
Reducing Genetic Testing Barriers for the Charcot-Marie-Tooth Community
Hereditary Neuropathy Foundation Partners with InformedDNA® on CMT Genie Project
HNF Launches Groundbreaking ‘ABCs of CMT Pain Management’ Guide
"ABCs of CMT Pain Management" is now on Amazon! The Hereditary Neuropathy Foundation is thrilled...
Pediatric CMT Natural History Study Enrollment Opening at Two Centers of Excellence
Pediatric CMT Natural History Study enhancement to their Charcot-Marie-Tooth (CMT) and Inherited Neuropathies (IN) patient registry, Global Registry for Inherited Neuropathies (GRIN).
CMT Research Update: Pediatric Ankle And Gait Function
HNF TRIAD Academic Partner Connecticut Children’s Publishes Results of CMT Pediatric Natural...
Hypotonia & CMT
Hypotonia, or low muscle tone, can be caused by a variety of factors, including genetic conditions like Charcot-Marie-Tooth (CMT) disease
Pediatric Care & Pain
What are the key CMT milestones, markers, and interventional therapies to consider when raising a child with CMT?
$61,000 Raised to Support Pediatric CMT Trials
Last summer HNF teamed up with the Penn Medicine Orphan Disease Center for the Million Dollar Bike Ride in Philadelphia.
HNF’s Pediatric Neurology Round Table at Child Neurology Society Conference
HNF team hosts dinner at Child Neurology Society Meeting to discuss unmet needs of pediatric CMT population with expert pediatric neuromuscular neurologists
Treating Children with Charcot-Marie-Tooth: Surgery
We answer questions from parents about treating their young children with orthopedic problems.
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