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A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
EmBrace It Podcast: Episode #5 Love & Disability – 5 Red Flags to Avoid
Finding love can be challenging and even more so when you have a disability. In this episode, Lainie & Estela share their thoughts on a listener’s online dating questions as well as 5 RED Flags to steer clear of when looking for a loving partner.
Know Your Disability Rights
What are our disability rights at work, school & society in general? When it comes to CMT, learning our rights can seem like a daunting and intimidating endeavor.
CMT & Canine Companions
Learn about how Canine Companions paired these best friends together and how Marvin makes Diana’s life easier and sweeter.
CMT Family Planning Webinar – Part 1: IVF & CMT
When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.
Accessible College: NEW CMT-Connect Webinar!
HNF is proud to have teamed up with Accessible College to help families and individuals with an introduction to the skills and tools needed to ensure a successful transition to and through higher education.
#100outof100
Dr. Phil may think that 100 out of 100 relationships involving caregiving fail, but we, and many more in our community, are proof he’s wrong!
Cannabis & CBD for CMT
Join our experts, Meg D’Elia & Brian Piper, PhD along with CMT patient panelists as they provide research, insight and personal experience on the topic of medical marijuana.
Brace Yourself For Another Day
Ginnell McDonald interview on writing Brace Yourself For Another Day
Free CMT Genetic Testing for a Common Axonal type of CMT to Prepare for Clinical Trial
A new type of Charcot-Marie-Tooth (CMT) has recently been identified caused by mutations in the SORD gene.
3 Reasons to Join the Global Registry for Inherited Neuropathies – GRIN!
What GRIN is and why you should join
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