Total posts in Category: 78
Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.
The American Psychological Association (APA) understands perfectionism as the tendency to expect flawless performance from others or oneself over what the situation requires.
Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:
HNF Launches the Ultimate CMT Amazon Wish List
Faces of CMT Photography Contest that represents challenges living with CMT and strategies to overcome them
Ginnell McDonald interview on writing Brace Yourself For Another Day
Dakota launched her own business, Blue Bear in August 2020 with a full line of greeting cards, stickers and enamel pins.
Joy Perry, CMT patient cast in a new Hallmark Christmas movie “The Christmas Bow.
Can meditation benefit Charcot-Marie-Tooth symptoms? The overwhelming research and evidence points to a resounding YES… Here are 7 reasons why!
Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.
Dakota Reilly launched a line of CMT related cards, stickers, and pins for CMT Awareness Month.
Teen CMT survey
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