Brandon, his wife, and Alana would host a virtual ‘Mow or Grow’ fundraiser with each $1 vote going towards CMT research.
Blog Category
Faces of CMT – CMT4A
Total posts in Category: 7
Act of Kindness: From Strangers to Instant Friends
On October 14, 2020, Winter School athletes in Wisconsin hit the Tuscobia Trail to raise much needed funding for HNF’s gene therapy program in support of Alana Kohler.
The Miracle We’ve Been Praying For!
Alana Kohler’s story of having CMT4A.
Meet the Kohler Family: Alana has GDAP1
Alana Kohler’s story with CMT4A.
EmBRACE It Podcast with Lainie Ishbia and Estela Lugo
We want our CMT viewers and listeners to feel like they can relate to us, and that it’s perfectly okay to be imperfect!
Hope for the Future for Owen
A gene therapy is within our reach for GDAP1 (CMT4A), an autosomal recessive loss of function disorder and effecting many patients like Owen.
Breaking Down The Barriers Of Charcot-Marie-Tooth Disease
Kristin is redefining what it’s like to live with Charcot-Marie-Tooth disease. Determined to be seen for who she is, rather than her disability, Kristin faces the daily challenges of CMT head on with grace, dignity, and perseverance.
Kristin’s story not only shows us how she is redefining herself, but how she is giving others living with CMT the courage to do the same. Let’s learn more about Kristin and how she’s breaking down the barriers of CMT.
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