a drug candidate has reached Phase 3 clinical trial, the critical last phase before potential FDA market approval
Blog Category
CMT Update
Total posts in Category: 74
HNPP Study Available for HNF Members
This study, which aims to uncover the rather unrecognized symptoms of Hereditary Neuropathy with Liability to Pressure Palsy (HNPP)
Patient-Centered Summit for CMT/HNPP: Cambridge, MA November 3, 2017
HNF is excited to hold the 2nd Annual Patient-Centered Summit with a focus this year on CMT/HNPP and Pain in Cambridge, MA!
10 Ways Participating In GRIN Helps Support CMT/IN Research
HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.
About The Summit Venue: 3 West Club, New York City
The Hereditary Neuropathy Foundation has selected historic 3 West Club to hold the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016.
Summit Speaker Spotlight: Gary Barg, The Fearless Caregiver
Those caring for patients living with CMT are invaluable members of our community. Caregivers are on the frontlines every day, helping patients manage their daily struggles and challenges of living with CMT.
Applying for Disability with Hereditary Neuropathy or CMT
Learn how you can apply for disability with Hereditary Neuropathy or CMT.
Top Ten Ways Participating in GRIN Helps Support CMT/IN Research
HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.
Meet Molly: A True CMT Warrior
Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.
The Hereditary Neuropathy Foundation Announces New Partnership With Acetylon Pharmaceuticals To Explore Potential Therapies For Charcot-Marie-Tooth Disease
The Hereditary Neuropathy Foundation (HNF) is proud to announce a new partnership with Acetylon Pharmaceuticals, Inc., a leader in the development of selective histone deacetylase (HDAC) inhibitors for enhanced therapeutic outcomes.
Hot Topic In HNF’s Inspire Online Support And Discussion Community: Hearing Loss And Charcot-Marie-Tooth
Our shared stories help show a connection between CMT and the symptoms we experience, such as hearing loss.
Q&A on Genetic Testing with Stephanie Gandomi, M.S., LCGC, of Invitae
HNF gets answers to questions on what is genetic testing, cost, family history, what happens to the data.
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Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
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Movement Is Medicine (17)
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Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
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Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
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Patient-Focused Research (1)
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Registry (16)
Research (95)
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Bike New York (19)
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Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
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University of Helsinki (2)
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