HNF invites Dr. James Nussbaum, PT, PhD, SCS, EMT, to lead us in a discussion on “Gaps in Available Patient Reported Outcomes and Barriers to Therapy Development” at the Summit.
Blog Category
CMT Summit
Total posts in Category: 53
Summit Speaker Spotlight: Tim Boyd From NORD
HNF has partnered with NORD to help us find the solutions and realize a brighter future for those living with CMT and other INs
Summit Speaker Spotlight: Dr. Lucia Notterpek
We would like to introduce you to Dr. Lucia Notterpek, an HNF Scientific Advisory Board member
Summit Panelist Spotlight: Estela Lugo
A long-time member of the CMT community, HNF enlisted Estela to become a moderator for our CMT-Connect™ workshops. She has generously committed her time to help lead and teach other CMT patients in her community.
Summit Panelist Spotlight: Kristin Gelzinis
HNF welcomes CMT community member Kristin Gelzinis, who will participate in the much anticipated panel discussion on exercise and the CMT patient.
Summit Panelist Spotlight: Jennifer Decker
HNF has asked Jenny to join us at the Patient-Centered Charcot-Marie-Tooth Summit to participate as a panelist in “Personalized Exercise Prescription.”
Meet Stefanie Sacks CMT Summit Keynote Speaker
The Hereditary Neuropathy Foundation is proud and privileged to introduce Stefanie Sacks, our keynote speaker at the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016 in New York City.
Summit Panelist Spotlight: Team CMT Founder Chris Wodke
The Hereditary Neuropathy Foundation’s Team CMT Founder and Manager Chris Wodke is changing the face of Charcot-Marie-Tooth one mile at a time. Chris is an accomplished triathlete, marathon runner, and cyclist.
The CMT Caregiver: Insights From Summit Speaker Gary Barg
HNF is honored to have Gary Barg, noted speaker, author, and publisher on caregiving issues since 1995, speak at the upcoming Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016.
Dorothy J. Fairman Memorial Travel Scholarship
Travel Scholarships up to $1000 USD available for CMT patients/caregivers to attend HNF’s 2016 Patient-Centered Charcot-Marie-Tooth Summit October 6, 2016
About the Patient-Centered Charcot-Marie-Tooth Summit
The goal of the Patient-Centered Charcot-Marie-Tooth Summit will be to expand the role of patients, caregivers and other stakeholders/
What Do We Mean By “Patient-Centered”?
HNF is planning the first ever Patient-Centered Charcot-Marie-Tooth Summit taking place on October 6, 2016 at the 3 West Club in New York City.
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Faces of CMT – Jaxson (7)
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Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
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Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
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Fashion and Products (1)
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Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
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Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
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Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
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Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
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Applied Therapeutics (10)
Pharnext (10)
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CMT Type – HDAC6 (1)
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