HNF Announces 3 New Drug Partnerships & Pathways Targeting Multiple Forms of CMT.
Blog Archive
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Adaptive Driving for CMT
Join us for a crash course on adaptive driving from evaluations, equipment, and certification!
Meet Amy Bois FUNctional Ambassador
Amy Bois is a titan in the fitness industry and in the adapted fitness world. She lives in Greenland, New Hampshire, where she not only trains individuals of all abilities under her Fit For Life banner, but is also the chair of the Spina Bifida Association of Greater New England.
Accessible CMT Home Tour
What does an accessible home look like? Join us for this fun and CMT-friendly home tour complete with their favorite spaces, tips and products
Connecting with Inclusive Employers – Inclusively Interview & Demo
Inclusively is an employment platform for job seekers with disabilities and goes beyond a candidate’s background, matching their experience, skills, and accommodations needed to succeed in the role.
What is SORD Deficiency: Part 2
Join us for this webinar as we learn more about Sorbitol Dehydrogenase (SORD) Deficiency
CMT Thrive Summit – Dating with a Disability
Dating, relationships, and intimacy play significant roles in the human experience.
A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
EmBrace It Podcast: Episode #5 Love & Disability – 5 Red Flags to Avoid
Finding love can be challenging and even more so when you have a disability. In this episode, Lainie & Estela share their thoughts on a listener’s online dating questions as well as 5 RED Flags to steer clear of when looking for a loving partner.
Adaptive Driving Tour with Bernadette
Learn more about the ins and outs of Adaptive Driving with Bernadette Scarduzio.
Know Your Disability Rights
What are our disability rights at work, school & society in general? When it comes to CMT, learning our rights can seem like a daunting and intimidating endeavor.
CMT & Canine Companions
Learn about how Canine Companions paired these best friends together and how Marvin makes Diana’s life easier and sweeter.
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Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
Living with CMT (78)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (7)
Nutrition (3)
Occupational Thearpy (2)
Pain (8)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (29)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (22)
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CMT Type – HDAC6 (1)
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CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (3)
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