A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.
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Holistic Wellness, Occupational Therapy and CMT
OT’s can help find holistic therapies and will collaborate with healthcare professionals to facilitate treatment.
HNF to fund promising research on Charcot-Marie-Tooth
HNF is committed to pursuing treatment and a cure for Charcot-Marie-Tooth disease, and we cannot fulfill this mission without your help.
Charcot-Marie-Tooth Awareness: In the News!
NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF’s most prominent partners who is the subject of an upcoming documentary, Bernadette.
CMT Research Update: HNF-Funded Projects
We are currently funding two very important research projects, one for CMT type 1 and the other for CMT type 2A.
Exercise and Activity Training for Patients with CMT: Application of the Exercise is Medicine Mode
The American College of Sports Medicine hosted the First World Congress for the “Exercise Is Medicine” (EIM) initiative in Baltimore, Maryland. The EIM enterprise is dedicated to improving health, wellness, and quality-of-life through regular physical activity and healthy behaviors.
Benefits of Exercise for Kids with CMT
Children with CMT should be active for a variety of reasons. Learn more about the benefits of exercise for kids.
Knowledge is Power: Overview of Special Education Law
Strong advocacy for education is often needed to ensure your child receives appropriate accommodations and services for academic success.
Be True to Yourself–Living with Charcot-Marie-Tooth
This CMT patient has worked with thousands of CMT families and draws her knowledge from past and present experiences.
CMT Awareness Month–Advocate!
New York state legislature passed a resolution memorializing NY Governor Andrew Cuomo to declare this September as CMT Awareness month in the state of New York.
December 1-3, 2011 – Champions for Charity
For the the first time ever, the Hereditary Neuropathy Foundation will participate in Americana Manhasset and Wheatley Plaza’s Champions for Charity®.
Running Marathons to Raise Awareness of Charcot-Marie-Tooth
“America’s Friendliest Marathon,” held in Richmond, VA this past weekend, included some important friends of the Hereditary Neuropathy Foundation who ran to raise awareness of Charcot-Marie-Tooth and to generate funds for research to find a cure.
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Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
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Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
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Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
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Legal Rights and Benefits (8)
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Nutrition (3)
Occupational Thearpy (2)
Pain (8)
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Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
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Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
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Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
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Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
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CMT Type – HDAC6 (1)
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