In an effort to connect with and support other people who have Charcot-Marie-Tooth, Nick developed his own website.
Blog Archive
Blog
Fundraiser for CMT Awareness a Huge Success
Almost 10 now, Erin was diagnosed Charcot-Marie-Tooth (CMT) four years ago. Over those four years there have been numerous trips to Boston for treatment and surgery.
Team CMT Leader to Run Boston Marathon
When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”
Film Release: Bernadette!
The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.”
July 28, 2012: Hamptons Spin-a-thon & Party!
The Hereditary Neuropathy Foundation (HNF) is thrilled to partner with B East Amgansett, NY and The Breakwater Yacht Club, Sag Harbor, New York, for our Fifth Annual Spin for the Cure.
A Great Ride at Bike New York
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
Stem Cell Line with Charcot-Marie-Tooth Available for Research
Thanks to collaborative efforts of the University of Michigan Consortium for Stem Cell Therapies and molecular research scientists at Michigan-based Genesis Genetics, scientists are one step closer to understanding Charcot-Marie-Tooth disease.
Team CMT leader finishes second at Boston Marathon
Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16!
Di Billick Runs 10k for Team CMT
Di also did something special for Team CMT. “I took my body to the absolute limit yesterday, Sunday, April 15th, in honor of Chris Wodke’s Boston Marathon run which took place the next day. I walked (no jogging or running) in one direction and had my husband pick me up when I couldn’t go any further.”
Coaching Athletes with Charcot-Marie-Tooth
Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it.
June 3, 2012: Wine, Beer and Vodka Tasting
Join us on Sunday, June 3, 2012 in Wolcott, CT for a Wine, Beer and Vodka tasting to raise money and awareness of Charcot-Marie-Tooth.
First Spin-a-thon of 2012 a Smashing Success!
In addition to donating space for the Spin-A-Thon and brunch, The Club encouraged attendees to make use of all the facilities for the day.
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Advocacy (7)
Awareness (34)
Centers of Excellence (13)
CMT (2)
CMT en Español (1)
CMT Summit (53)
CMT Update (74)
CMT-Connect (29)
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Emerging Technologies (1)
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Registry (16)
Research (95)
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Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
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University of Helsinki (2)
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Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
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Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (22)
CMT Type – CMT1B (2)
CMT Type – CMT1X (3)
CMT Type – CMT2A (9)
CMT Type – CMT2C (5)
CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (3)
Ways to Give (4)
Awareness (34)
Centers of Excellence (13)
CMT (2)
CMT en Español (1)
CMT Summit (53)
CMT Update (74)
CMT-Connect (29)
CMT-Connect Webinars (10)
Webinars – Accessible Travel (3)
Webinars – Adaptive Driving (2)
Webinars – Bracing (1)
Webinars – Breathing (1)
Webinars – Canine Companions (1)
Webinars – Cannabis (3)
Webinars – Dating and Relationships (3)
Webinars – Family Planning (1)
Webinars – FEATURED (6)
Webinars – Genetic Testing (1)
Webinars – Home Accessibility (2)
Webinars – Inclusive Employment (3)
Webinars – Inspire Community (1)
Webinars – Legal Rights and Benefits (3)
Webinars – Newly Diagnosed (2)
Webinars – Nutrition (1)
Webinars – Pain (5)
Webinars – Podcasts (1)
Webinars – PT and Exercise (9)
Webinars – Research and Clinical Trials (9)
Webinars – School and College (4)
Webinars – Surgery (2)
Webinars – Telemedicine (1)
Webinars- Emotional and Mental Health (5)
Community (4)
Emerging Technologies (1)
Faces of CMT (1)
Faces of CMT – Addie (2)
Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
Living with CMT (78)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (7)
Nutrition (3)
Occupational Thearpy (2)
Pain (8)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (29)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (22)
CMT Type – CMT1B (2)
CMT Type – CMT1X (3)
CMT Type – CMT2A (9)
CMT Type – CMT2C (5)
CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (3)
Ways to Give (4)
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