Holiday Shopping Benefit – Shop Till You Drop Hereditary Neuropathy Foundation is participating...
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Save the Date: Friday January 29, 2016 Boca Raton, Florida to Benefit CMT Type 2
Charity Card Party Brunch and Boutique Please join us January 29, 2016 at 10:30 at Broken...
One More Rep: Ed Moore Is Working Out For Charcot-Marie-Tooth Awareness
Ed Moore, a Team CMT leader who is committed to spreading awareness of CMT with a pretty creative and bold fundraising strategy.
Jillian’s Cure Super Hero 5K: Help Save Children With Optic Atrophy
Come join us on April 23, 2016, for Jillian’s Cure Super Hero 5K event in Columbia, SC. Jillian’s Cure was founded by Carolyn Nava, after her daughter Jillian was diagnosed with Optic Atrophy/Optic Neuropathy: a rare inherited neuropathy with no effective treatments or cures.
Hereditary Optic Neuropathy
Optic neuropathy is one of the symptoms of a less common form of Charcot-Marie-Tooth disease known as CMT6.
Our Commitment To Charcot-Marie-Tooth Awareness Never Ends
Awareness FBWhile Charcot-Marie-Tooth Awareness Month officially comes to an end today, the Hereditary Neuropathy Foundation’s commitment to spreading CMT awareness carries on every single day of the year.
US Senator Kirsten Gillibrand Recognizes Charcot-Marie-Tooth Awareness Month
Senator Gillibrand has graciously shown her recognition of Charcot-Marie-Tooth Awareness Month by sharing a letter about HNF’s mission, the importance of greater awareness, and the need for increased research and clinical trials
Charcot-Marie-Tooth Won’t Stop The ‘Karaoke King
Patrick was an accomplished athlete in high school, participating in many sports and even boasting a 85mph fastball. But his deformed feet prevented him from running, eliminating any chance to pursue sports past high school.
#SeptemberSelfieCMT For Charcot-Marie-Tooth Awareness Month
All you have to do is snap a selfie with #SeptemberSelfieCMT in the photo and share it on all your social media pages.
Every Voice Makes A Difference: Social Media Awareness For Charcot-Marie-Tooth Disease
it’s so important for you to join The Hereditary Neuropathy Foundation on all of our social media channels.
My 50th Birthday Wish: A Special Message From HNF Founder Allison Moore
I knew the only way I was going to have a fighting chance against this still unknown disease was to give CMT a voice.
Muscle Matters: Exercise And Charcot-Marie-Tooth Disease
Exercise has the potential to improve functional ability, independence, and quality-of-life for CMT patients.
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Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
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Industry (5)
Living with CMT (78)
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Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (23)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (2)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (8)
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Occupational Thearpy (2)
Pain (8)
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PT and Exercise (25)
Research and Critical Trials (34)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (3)
Pediatrics & CMT (12)
Registry (16)
Research (98)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
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Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
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TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
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University of San Antonio Texas (1)
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Applied Therapeutics (10)
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