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CMT 6 Football Event
On October 23, 2015 the Victor New York Blue Devils Football boosters and coaching staff dedicated their first playoff game from their undefeated season to team manager Zach Houliares.
#GivingTuesday: Why Do We Give?
The Hereditary Neuropathy Foundation is proud and excited to kick off the charitable season with #GivingTuesday on December 1st. #GivingTuesday unites people across the world by sharing our capacity to care for and empower each other.
Do You Need Ideas For Shoes To Accommodate Your Braces?
Do you have difficulty finding stylish shoes other than sneakers that accommodate your braces?...
Does your Charcot-Marie-Tooth symptoms make dog ownership difficult?
Does your Charcot-Marie-Tooth symptoms make dog ownership difficult? Do you wear braces that make...
Champions For Charity: Helping Those Living With Charcot-Marie-Tooth
What if every purchase you make this holiday season could earn dollars for Charcot‐Marie‐Tooth...
Leg Braces, AFOs & CMT: Finding the Right Fit
Has the time come for leg braces? If so, there are a lot of options to find the right brace for...
Global Registry For Inherited Neuropathies: Your Questions Answered
Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.
Team CMT: Join The Movement & Make A Difference!
The holiday season is a great opportunity to make a difference for those living with...
#MyGivingStory
This November, the #GivingTuesday movement is running #MyGivingStory, a new storytelling contest...
#GivingTuesday December 1, 2015: Giving Back This Holiday Season
The Hereditary Neuropathy Foundation is proud to continue our support of #GivingTuesday. Come join us on December 1st and participate in this globally recognized movement of giving and philanthropy.
Tips For Living With Charcot-Marie-Tooth During The Holidays
CMT patients can give themselves the best opportunity to stay healthy and happy this holiday season with these helpful tips.
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Faces of CMT – Addie (2)
Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
Living with CMT (78)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (7)
Nutrition (3)
Occupational Thearpy (2)
Pain (8)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (29)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
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Applied Therapeutics (10)
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