Blog

Multiple Sclerosis is the most common autoimmune disorder affecting the central nervous system, with more than 2.3 million people affected worldwide.

Hereditary Neuropathy Foundation is hosting the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016 in New York City.

Adding a genetic counselor to your team of healthcare professionals can be a great benefit for CMT patients and their caregivers.

HNF has invited Dr. Gudesblatt to join us as a panelist on “Standard of care and clinical outcome measures to impact the patient and future research” at the Summit.

Dr. Burgess is on the scientific advisory board of the Hereditary Neuropathy Foundation, and also serves on the Cellular and Molecular Biology of Neurodegeneration grant review panel for the National Institutes of Health.

HNF invites Dr. James Nussbaum, PT, PhD, SCS, EMT, to lead us in a discussion on “Gaps in Available Patient Reported Outcomes and Barriers to Therapy Development” at the Summit.

HNF has partnered with NORD to help us find the solutions and realize a brighter future for those living with CMT and other INs

We would like to introduce you to Dr. Lucia Notterpek, an HNF Scientific Advisory Board member

A long-time member of the CMT community, HNF enlisted Estela to become a moderator for our CMT-Connect™ workshops. She has generously committed her time to help lead and teach other CMT patients in her community.

HNF welcomes CMT community member Kristin Gelzinis, who will participate in the much anticipated panel discussion on exercise and the CMT patient.

HNF has asked Jenny to join us at the Patient-Centered Charcot-Marie-Tooth Summit to participate as a panelist in “Personalized Exercise Prescription.”