Therma Pool therapy session and demo as they discuss the benefits of aquatic exercise for CMT and more!
Thermapool Therapy
by Courtney | Jan 11, 2017 | CMT-Connect, Faces of CMT - Bernadette, PT and Exercise, Webinars - PT and Exercise | 0 Comments
Blog Archive
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Thermapool Therapy
How Yoga Can Help Charcot-Marie-Tooth Patients
Could yoga help CMT patients manage their symptoms?
Physical Therapy For Children With Charcot-Marie-Tooth Disease
Children with CMT who are struggling with the activities of daily living may greatly benefit from a physical therapy program.
Scavenger Hunt Motorcycle Event for CMT6: A Success
The Rochester Chrome Divas hosted a Scavenger in the Finger Lakes of NY on September 9th. Mother nature provided us a sunny cool fall day for the ride.
Top 10 Ways to Spread CMT Awareness
HNF HAS COME UP WITH TEN WAYS YOU CAN DO YOUR PART AND HELP ALL OF US SPREAD CHARCOT-MARIE-TOOTH AWARENESS:
Thank You to Everyone Involved with PLEO-CMT Trial!
a drug candidate has reached Phase 3 clinical trial, the critical last phase before potential FDA market approval
HNPP Study Available for HNF Members
This study, which aims to uncover the rather unrecognized symptoms of Hereditary Neuropathy with Liability to Pressure Palsy (HNPP)
CMT-Connect: January 12, 2017 HNF Takes CMT-Connect On-Line!
HNF is excited to announce our first CMT-Connect Workshop webinar on January 12, 2017 from 7:00-9:00pm.
January 27, 2017 – Bridge/Brunch Fundraiser
Charity Card Party Brunch and Boutique
Please join us January 27, 2017 at 10:00 at the Broken Sound Country Club, Boca Raton Florida. Join us for an exquisite brunch and card party to benefit the H.E.L.P fund/HNF at Broken Sound Country Club in Boca Raton, FL.
Scavenger Hunt Victor, New York: September 9, 2017
Scavenger hunt September 9th, 2017
Summer Send-Off Celebration, Charlestown, RI: September 23, 2017
All proceeds will go to the Hereditary Neuropathy Foundation to fund research for Charcot-Marie-Tooth Type 2.
Patient-Centered Summit for CMT/HNPP: Cambridge, MA November 3, 2017
HNF is excited to hold the 2nd Annual Patient-Centered Summit with a focus this year on CMT/HNPP and Pain in Cambridge, MA!
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Faces of CMT – Jaxson (7)
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Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
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Inspire Community (7)
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Occupational Thearpy (2)
Pain (8)
Podiatry (4)
PT and Exercise (25)
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School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
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University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
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Applied Therapeutics (10)
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CMT Type – CMT1A (22)
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CMT Type – CMT1X (3)
CMT Type – CMT2A (9)
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CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
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CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
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