We had another amazing turnout for our 9th annual Grace’s Courage Crusade fundraiser for CMT2.
Blog Archive
Blog
Inner Peace Meditation
Join Alana Kessler for this reflective and healing guided meditation.
Overview of the Patient-Centered CMT/HNPP Pain Summit 2017
On November 3, 2017, nearly 100 participants gathered in Boston for HNF’s Patient-Centered CMT/HNPP Pain Summit.
Team CMT Members Capture National Titles
Team CMT now has two National Champions! Read more about Team CMT members Joy DeCaro Perry and Chris Wodke.
Chrome Divas Host Another Successful CMT6 Event
On September 9th, The Rochester Chrome Divas hosted a Scavenger Hunt to raise money for CMT6 research.
Gearing Up for the TD Bank Five Boro Bike Tour
The TD Bank Five Boro Bike Tour will take place on May 6, 2018. Come join us!
Hope on the Horizon: CMT & FDA Patient-Focused Drug Development Meeting for Charcot-Marie-Tooth to be Held in 2018
HNF will be holding a landmark externally-led Patient-Focused Drug Development (PFDD) Meeting CMT & INs in Washington, D.C. on September 28, 2018. The meeting will be held in conjunction with September National CMT Awareness Month.
Pharnext’s lead PLEODRUG © for treatment of CMT1
Pharnext completed patient enrollment for the international Phase 3 clinical trial of PXT3003, Pharnext’s lead PLEODRUG ©, for treatment of CMT1A.
We Care About Research for Hereditary Neuropathy with Liability to Pressure Palsies (HNPP)!
HNPP is the second most common form of CMT/IN and may affect approximately 15,000 in the USA. Help us find a cure today!
Hereditary Neuropathy Foundation Announces Patient-Centered CMT/HNPP Pain Summit
HNF is proud to announce that our annual CMT Summit will include the HNPP community Friday, November 3, 2017, in Cambridge, Massachusetts.
CMT & Balance Webinar
Discuss the balance issues that accompany CMT and review some PT movements to promote improvement.
Q&A with Inspire CMT Community Member Amanda Pool
Amanda Pool shares her experience with the online Inspire CMT Community.
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