Meet Lainie Ishbia who will be speaking during the Voice of the Patient Weekend about behavioral health & CMT.
Blog Archive
Blog
Meet Linda Crabtree: Author of “CMT and Me”
An intimate 75-year journey of love, loss and refusal to surrender to a disabling disease.
Panetta Physical Therapy Webinar
Join us for an introduction to Physical Therapy.
Global Genes To Host The 2018 RARE Patient Advocacy Symposium
Global Genes, in partnership with the University of Pennsylvania School of Medicine Orphan Disease Center, will host the 2018 RARE Patient Advocacy Symposium in Philadelphia on May 19th, 2018.
HNF’s Landmark Externally-Led Patient-Focused Drug Development Meeting
HNF will be holding a landmark externally-led Patient-Focused Drug Development Meeting for CMT and INs in Washington, D.C. on Friday, September 28, 2018.
CMT & Finances
Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services.
The CMT Community Needs You!
Start the New Year by getting involved and helping HNF conquer CMT. There are many ways you can get involved.
Em-bracing Fashion with Lainie Ishbia
Meet Lainie Ishbia who created Trend-ABLE to empower women with invisible physical disabilities and challenges.
Neurology Reviews® & NORD Publish 2018 Rare Neurological Disease Special Report
The 2018 Rare Neurological Disease Special Report has been published by Neurology Reviews in collaboration with NORD.
CMT Careers: No Piece Of Cake
Sometimes physical challenges can dictate job and career paths.
Meet the 2018 TD Bank Five Boro Bike Tour Team CMT
Here’s a snapshot of the inspiring Team CMT riders and why they are participating in this year’s TD Bank Five Boro Bike Tour.
$200,000 In Donations From True Reply Supports CMT Research
True Reply and HNF have collaborated to enhance patient focused research and knowledge of what matters most to patients living with CMT.
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