CMT&Me is an observational, non-interventional study, sponsored by Pharnext, to collect Real-World Evidence (RWE) from people living with CMT.
We spoke with Paralympic swimmer, Jamal Hill about how he got started swimming, what it takes to make it to the Paralympics, his CMT journey and much more!
On May 19, HNF participated in the Rare Patient Advocacy Symposium in partnership with Penn Medicine Orphan Disease Center and Global Genes.
On May 6, 2018, Team CMT conquered 42 miles of the TD Bank Five Boro Bike Tour through each of Manhattan’s five boroughs!
I am attending HNF’s “Voice of the Patient” Weekend 2018 to tell the FDA and other stakeholders how TRPV4 HN impacts my life.
HNF catches up with Team CMT Member Katherine Crandall Symons
HNF is excited to announce that Dr. Lucia Notterpek will Take the Reins as HNF’s New Chief Scientific Officer.
HNF is excited to announce the addition of four new board members to our team!
We caught up with Dr. Govindarajan, board certified neuromuscular physician at University of Missouri, to discuss his multifaceted approach to treating CMT.
When we learned of Rob Smith’s story, and how his line of gripping aids came to be, we knew it was one worth sharing.
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.
Are all of your CMT symptoms really CMT symptoms?
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