I felt like “The Little Engine That Could.” I decided that day that CMT does not define me, it’s just a part of me. Read Gabrielle’s inspiring story here!
Blog Archive
Blog
CMT&ME APP Adds New Medical Profile
The CMT&ME app has updated the research app to include a brand new medical profile.
HNF tackles the hidden mysteries behind the genetic diagnosis of CMT mitochondrial diseases
C12orf65 gene, a rare form of CMT also known as Leigh Syndrome is robbing young children of a normal life even beyond the classic CMT symptoms.
PATIENT’S VIEW OF HNF MOVEMENT IS MEDICINE SUMMIT
Cheryl Sherman’s experience at the Movement is Medicine™ Summit
A Successful Movement is Medicine™ Summit
We are grateful to all the patients who participated in this groundbreaking event! The wonderful feedback we have received makes all of the hard work and planning well worth it.
Won’t You Please Consider A Year End Gift?
Learn the top 15 ways the Hereditary Neuropathy Foundation put your generous donations to work for you this year.
Marvin, my Service Dog
Now thanks to Marvin, my Canine Companions for IndependenceⓇ service dog, my life is so much fuller.
A Successful Movement is Medicine™ Summit
“Like meeting family you never knew you had, but always wanted.”
CMT&Me Study
There’s been little research to date into how CMT affects the lives of patients…
PNS, It’s A Global Effort
Where do the top CMT researchers in the world unite to share leading-edge research? The Peripheral Nerve Society (PNS) meeting!
HNF & Inspire Present Poster at Global Genes 2019 Rare Drug Development Symposium
In 2009, HNF partnered with Inspire, a social network for health, to launch a CMT online support community.
HNF Presents Research Findings at Three Prestigious Conferences
Read more about the research findings presented at these conferences.
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TCS New York City Marathon (7)
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