Can meditation benefit Charcot-Marie-Tooth symptoms? The overwhelming research and evidence points to a resounding YES… Here are 7 reasons why!
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Ann Taylor Jones – Covid Nurse Working on the Front Lines
Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.
HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs – Now Available in English & Italian!
Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.
US Food and Drug Administration has agreed with Pharnext and provided clear guidance on the regulatory pathway to approval for PXT3003, including key design elements of a single pivotal Phase III study
The FDA has agreed with the key elements of Pharnext’s approach for the developmental pathway to approval for PXT3003.
New Pediatric Center of Excellence – Children’s Hospital Colorado, Dr. Michelle Yang
CMT patients will welcomed at our newest Center of Excellence, Children’s Hospital Colorado. Here they can meet with a rehabilitation specialist, orthopedic surgeon, occupational and physical therapists, as well as a neuropsychologist.
THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) PROGRAM REQUEST FOR PROPOSAL GUIDELINES
The Hereditary Neuropathy Foundation (HNF) would like to advance preclinical research as quickly as possible if it aligns with our key objectives.
Team CMT – 10 Years Strong
Team CMT Accomplishments and Founding Story
Matt Downing Takes the Reins as HNF’s New Board Chairman
Matt Downing has been selected as Chairman of the HNF Board of Directors
Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT) Calling CMT1A Patients Ages 18-75
This study is a new international research project funded by the National Institutes of Health (NIH) called Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT).
NEW CMT Stationery by Designer, Dakota Reilly – Blue Bear
Dakota Reilly launched a line of CMT related cards, stickers, and pins for CMT Awareness Month.
SEPTEMBER IS CMT AWARENESS MONTH 2020 THEME “CMT IS RUFF”
HNF would like to invite all dog owners (and non dog-owners) and their furry besties to take a bite out of CMT this September.
Teen Survey
Teen CMT survey
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Research (95)
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