CMT Speak Out – #CMTspeakout
Charcot-Marie-Tooth (CMT) disease is one of the most common yet least-known neuromuscular disorders. This year, for CMT Awareness Month 2024, we embrace the theme “CMT Speak Out“—a powerful call for those affected to share their stories and raise awareness.
Speaking out isn’t just about visibility; it’s about creating change. By sharing your journey, advocating for better care, and informing research, you help break the silence surrounding CMT. In a world where so few know about this condition, your voice can spark understanding, foster support, and drive progress.
This September, let’s unite and speak out to make CMT visible and empower our community!
10 Ways to Speak Out – #CMTSpeakOut
#1 Speak Out & share your CMT support: Upload our NEW “CMTSpeakOut” Facebook Profile Photo Frame.
#2 Speak Out about how CMT affects your life: Follow HNF and tag us on your CMT Awareness Month posts! Not sure what to post? Use one of our 10 CMT (re) Post-its here. #CMTspeakout #CMTwegotthis
#3 Speak Out to doctors about the care you need. Whether you need pain management support, genetic testing, PT, OT, or mobility aid prescriptions, you deserve compassionate and professional care. Visit HNF’s Patient Resource section or CMT Centers of Excellence page, or email us at [email protected].
#4 Speak Out to yourself with kindness and compassion: Order or download HNF’s NEW CMT 30-Day Self-Care Journal, now available as a free PDF or on Amazon; all proceeds go to CMT research and programs.
#5 Speak Out & ask for help from friends and family: Educate friends and family about CMT and ask for the help you need without feeling unworthy or ashamed. Listen to empowering and inspiring conversations with fellow disability advocates from HNF’s EmBrace IT Podcast.
#6 Speak Out to researchers about what treatments matter most to you through GRIN: HNF’s GRIN is how CMT researchers and industry access the crucial, de-identified data they need to design the treatments and clinical trials our CMT families need. Join GRIN today and complete the latest surveys to make an impact that matters!
#7 Speak Out to local community groups and businesses: Join or host a Team CMT fundraiser and awareness campaign!
#8 Speak Out for disability accommodations, services and legal rights. Whether it’s related to legal rights & benefits, inclusive employment, school, or college, learn more about the support you and your family need with HNF’s CMT Connect webinars.
Speak Out about CMT solutions, tips, and hacks that work for you: Post, tag us, and email your best CMT advice to [email protected].
Donate to Charcot-Marie-Tooth research and programs
0 Comments