CATEGORIES: Faces of CMT - Grace

Arlene On the Scene: Barrington Books Fall Festival

by | Oct 25, 2012 | 0 comments

Barrington Books Fall Books FestivalIn Rhode Island last weekend, Carol Liu and Marybeth Caldarone introduced some new readers to Arlene at the Fourth Annual Barrington Books Fall Festival of Childrens Authors and Illustrators.  Marybeth read a favorite passage from Arlene on the Scene.  Together, she and Carol answered questions from young and old alike about Charcot-Marie-Tooth (CMT). “The festival was such a nice opportunity to let kids know about Arlene and raise awareness about CMT,” said Marybeth.

Barrington Books is an independent book store located in East Bay, R.I.  Beautifully decorated with a nighttime seascape above the children’s section and comfy chairs that beg for someone to curl up on them, it is the perfect setting in which to share stories and pictures.  We enjoyed our time with the staff as well the other authors and illustrators.  Thank you Barrington Books for inviting us to participate!

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Grace’s Courage Crusade Brunch 2013

by | Nov 8, 2013 | , | 0 Comments

A bright, crisp day greeted supporters of Grace’s Courage Crusade as they gathered to enjoy brunch by the beach with breathtaking views at the Atlantic Beach Club in Newport, RI. Following the amazing buffet spread, the crowd got intense over a dessert auction that offered tempting sweets and goodies provided by local businesses.

Another Successful Year Spreading CMT Awareness

by | Jul 12, 2013 | | 0 Comments

Forty-six schools, eight states, 6600 students. The third year of the Hereditary Neuropathy Foundation’s School Outreach Program was our best yet! From the authors’ home state of Rhode Island, to our current home in New York, and on out to Chicago, Philadelphia, Washington, DC and Dallas, we met our goal of reaching more students, teachers and parents than ever.

Talking With Classmates about CMT

by | Jun 5, 2013 | | 0 Comments

Older sister Erin, who also lives with Charcot-Marie-Tooth, pitched in along with mom, Monica Hughes. With a polished powerpoint show that included pictures and videos, plus doughnuts at the end, Miah’s classmates were engaged and ready to understand!

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