HNF breaking ground with exciting gait study utilizing new digital technology – ProtoKinetics Zeno Walkway Gait Analysis System
Author Archive
Estela Lugo
Catching Up with Team CMT Member, Gabrielle Blakey
I felt like “The Little Engine That Could.” I decided that day that CMT does not define me, it’s just a part of me. Read Gabrielle’s inspiring story here!
CMT&ME APP Adds New Medical Profile
The CMT&ME app has updated the research app to include a brand new medical profile.
HNF tackles the hidden mysteries behind the genetic diagnosis of CMT mitochondrial diseases
C12orf65 gene, a rare form of CMT also known as Leigh Syndrome is robbing young children of a normal life even beyond the classic CMT symptoms.
PATIENT’S VIEW OF HNF MOVEMENT IS MEDICINE SUMMIT
Cheryl Sherman’s experience at the Movement is Medicine™ Summit
Won’t You Please Consider A Year End Gift?
Learn the top 15 ways the Hereditary Neuropathy Foundation put your generous donations to work for you this year.
“Take A Look At This Heart“
Love, Sex & Disability Revealed in Groundbreaking New Documentary by Ben Duffy
Child Neurology Foundation (CNF) Leads a Collaborative Peer Support Work Group
HNF was honored to be chosen by the Child Neurology Foundation as the one of 11 advocacy groups.
HNF to Host Educational CMT Symposium at AANEM Annual Conference
HNF to host an educational CMT symposium at AANEM’s Annual Conference October 10-13th in Washington, D.C.
Allison Moore Speaker at 2018 Rare Patient Advocacy Symposium
On May 19, HNF participated in the Rare Patient Advocacy Symposium in partnership with Penn Medicine Orphan Disease Center and Global Genes.
StarWise Therapeutics LLC & HNF Join Forces for Treatment of CMT2A
StarWise Therapeutics LLC & HNF join forces to expedite the advancement of a new drug entity to the clinic for the treatment of CMT2A.
Why HCP’s Should Join HNF’s Provider Directory
HNF’s HCP Directory aims to improve the process of finding local care resources of professionals with CMT-related experience.
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