Matt Downing has been selected as Chairman of the HNF Board of Directors
Author Archive
Estela Lugo
Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT) Calling CMT1A Patients Ages 18-75
This study is a new international research project funded by the National Institutes of Health (NIH) called Accelerate Clinical Trials in Charcot-Marie-Tooth Disease (ACT-CMT).
NEW CMT Stationery by Designer, Dakota Reilly – Blue Bear
Dakota Reilly launched a line of CMT related cards, stickers, and pins for CMT Awareness Month.
SEPTEMBER IS CMT AWARENESS MONTH 2020 THEME “CMT IS RUFF”
HNF would like to invite all dog owners (and non dog-owners) and their furry besties to take a bite out of CMT this September.
Teen Survey
Teen CMT survey
Clinical Trial for CMT1A begins in Korea
Helixmith, specializing in gene therapy research for over 20 years, has kicked off its phase I and 2a clinical trial for using VM202 (Engensis) to treat CMT1A.
The Miracle We’ve Been Praying For!
Alana Kohler’s story of having CMT4A.
University of North Carolina Becomes New Center of Excellence
Introducing Dr. Rebecca Traub, University of North Carolina
HEREDITARY NEUROPATHY FOUNDATION (HNF) IS HERE FOR YOU DURING THIS TIME OF UNCERTAINTY
HNF team has been working tirelessly to produce content and programs to help the CMT Community during this time of uncertainty.
Press Release: Pharnext provides regulatory and clinical update on PXT3003 Phase III study for the treatment of Charcot-Marie-Tooth Type 1A
US Food and Drug Administration has agreed with Pharnext and provided clear guidance on the regulatory pathway to approval for PXT3003, including key design elements of a single pivotal Phase III study
HNF’s Newest Center of Excellence: Austin Neuromuscular Center, Dr. Yessar Hussain
Introducing Yessar Hussain
Good News for CMT1A Patients – PXT3003
Three major regulatory agencies in the United Kingdom, Europe and US have recognized PXT3003 as a lead drug candidate to treat CMT1A.
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