Dakota launched her own business, Blue Bear in August 2020 with a full line of greeting cards, stickers and enamel pins.
Author Archive
Estela Lugo
CMT-Connect Pain Webinar
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
HNF’s New Center of Excellence: AtriumHealth Charlotte, NC
Interview on Dr. Urvi Desai
Department of Neurology at UCLA
Interview of Dr. Anasheh Halabi
CMT&Me COMPETITION
Participating during CMT month
Meditation for CMT is a No-Brainer
Can meditation benefit Charcot-Marie-Tooth symptoms? The overwhelming research and evidence points to a resounding YES… Here are 7 reasons why!
Ann Taylor Jones – Covid Nurse Working on the Front Lines
Ann Taylor Jones, a CMT1A patient, was told her whole life that she could never be a nurse. Now she works as a full-time ICU nurse treating COVID-19 patients.
HNF Collaborates with Italian CMT Organization ACMTRete on the ABCs of AFOs – Now Available in English & Italian!
Last Fall, HNF teamed up with Mitchell Warner, CPO, Ortho Rehab Designs Prosthetics and Orthotics, INC., and a panel of CMT patients to thoughtfully put together a comprehensive 10-page packet to educate and empower our community.
US Food and Drug Administration has agreed with Pharnext and provided clear guidance on the regulatory pathway to approval for PXT3003, including key design elements of a single pivotal Phase III study
The FDA has agreed with the key elements of Pharnext’s approach for the developmental pathway to approval for PXT3003.
New Pediatric Center of Excellence – Children’s Hospital Colorado, Dr. Michelle Yang
CMT patients will welcomed at our newest Center of Excellence, Children’s Hospital Colorado. Here they can meet with a rehabilitation specialist, orthopedic surgeon, occupational and physical therapists, as well as a neuropsychologist.
THERAPEUTIC RESEARCH IN ACCELERATED DISCOVERY (TRIAD) PROGRAM REQUEST FOR PROPOSAL GUIDELINES
The Hereditary Neuropathy Foundation (HNF) would like to advance preclinical research as quickly as possible if it aligns with our key objectives.
Team CMT – 10 Years Strong
Team CMT Accomplishments and Founding Story
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