Thank you to everyone who attended this fun event with music, shoes, and plenty of shotguns, for Jaxson’s Cure.
Author Archive
Estela Lugo
Battersby Lab Donor Story: Fighter Moms Donate to Vital Research into Mitochondrial Diseases
Battersby Lab Donor Story Fighter Moms Donate to Vital Research into Mitochondrial Diseases
SORD INSPIRE Phase III Clinical Trial
HNF Partner Applied Therapeutics is Currently Enrolling SORD Deficiency Patients for the INSPIRE Phase III Clinical Trial
Moving Away From Perfectionism
The American Psychological Association (APA) understands perfectionism as the tendency to expect flawless performance from others or oneself over what the situation requires.
3 New CMT Drug Development Projects
HNF Announces 3 New Drug Partnerships & Pathways Targeting Multiple Forms of CMT.
CMT Family Planning Webinar – Part 1: IVF & CMT
When it comes to family planning & CMT, there are ever-growing concerns, questions, and scientific developments that can seem overwhelming and have us questioning, “Where do we start?”. The Hereditary Neuropathy Foundation aims to shed light on this vast topic with a 3-Part Family Planning Series.
Alan Jackson Reveals He Has Charcot-Marie-Tooth, CMT
Following the recent interview of country music star, Alan Jackson, with Jenna Bush Hagar on the TODAY Show where he revealed that he has balance issues related to his CMT, Prevention magazine contacted HNF for more information about CMT. HNF Founder, Allison Moore was quoted in the article:
HNF collaborates with Rarebase on a Drug Discovery Platform to develop treatments for Charcot-Marie-Tooth (CMT)
HNF collaborates with Rarebase on a Drug Discovery Platform to develop treatments for Charcot-Marie-Tooth (CMT)
Accessible College: NEW CMT-Connect Webinar!
HNF is proud to have teamed up with Accessible College to help families and individuals with an introduction to the skills and tools needed to ensure a successful transition to and through higher education.
Meet New Movement Is Medicine™ Ambassador, Janice Laurence
Meet Janice Laurence – a professionally certified teacher in BC, Canada since 1990.
Meet New Movement Is Medicine™ Ambassador, Traci Williams
Meet New Movement Is Medicine™ ambassador, Traci Williams, born with CMT 1A, teaching yoga since 2011 with over 500 hours of related training.
NEW Center of Excellence: Ryan Jacobson MD, Rush University, Chicago IL
Ryan Jacobson – a neuromuscular specialist at Rush University in Chicago. Completed neurology and neuromuscular training at the University of Michigan in Ann Arbor, Michigan.
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