Join us for this webinar as we learn more about Sorbitol Dehydrogenase (SORD) Deficiency
Author Archive
Courtney
CMT Thrive Summit – Dating with a Disability
Dating, relationships, and intimacy play significant roles in the human experience.
A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
A study of the correlation between gait abnormalities, activity monitoring parameters, CMTPedS and a biomarker in children with Charcot-Marie-Tooth disease.
EmBrace It Podcast: Episode #5 Love & Disability – 5 Red Flags to Avoid
Finding love can be challenging and even more so when you have a disability. In this episode, Lainie & Estela share their thoughts on a listener’s online dating questions as well as 5 RED Flags to steer clear of when looking for a loving partner.
Adaptive Driving Tour with Bernadette
Learn more about the ins and outs of Adaptive Driving with Bernadette Scarduzio.
Know Your Disability Rights
What are our disability rights at work, school & society in general? When it comes to CMT, learning our rights can seem like a daunting and intimidating endeavor.
CMT & Canine Companions
Learn about how Canine Companions paired these best friends together and how Marvin makes Diana’s life easier and sweeter.
Applied Therapeutics Announces Initiation of Registrational Phase 2/3 Study of AT-007 in SORD Deficiency
Press Release
Applied Therapeutics Reports Biomarker Data from Pilot Trial of AT-007 in SORD Deficiency
Press release
Jaxson’s Clay Shoot 2021
Jaxson’s Clay Shoot 2021 Image gallery
#100outof100
Dr. Phil may think that 100 out of 100 relationships involving caregiving fail, but we, and many more in our community, are proof he’s wrong!
Cannabis & CBD for CMT
Join our experts, Meg D’Elia & Brian Piper, PhD along with CMT patient panelists as they provide research, insight and personal experience on the topic of medical marijuana.
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