Learn more from orthopedic surgeon Glenn Pfeffer, MD about surgery and CMT patients.
Author Archive
Courtney
A Bad Break…When You Have Charcot-Marie-Tooth
Dr. Sheskier says that with CMT and other neurogenic diseases, the danger is that the patient is fooled into thinking his or her bone is fully healed when it is not.
Medical Fields Related to Surgery
Learn more about the medical fields related to surgery.
Spotlight: Bike New York Riders
On Sunday, May 5, 2013 among the crowd of 32,000 cyclists expected to participate in New York City’s TD Five Boro Bike Tour will be two busy New Yorkers cycling to raise awareness of and funds for Charcot-Marie-Tooth.
Spotlight on the Mattheiss Family
Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community.
March 31, 2012–Spin for the Cure, New Jersey!
On Saturday, March 31st from 10am-12pm we’ll be spinning away at The Club at Morristown, 118 Headquarters Plaza, Morristown, NJ.
Social Security Programs for Those with Charcot-Marie-Tooth
Many people think social security benefits are only for the elderly or retired, but social security benefits are also available for people who meet the government’s definition of disability.
More Magazine features story on Charcot-Marie-Tooth
A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.
Holistic Wellness, Occupational Therapy and CMT
OT’s can help find holistic therapies and will collaborate with healthcare professionals to facilitate treatment.
HNF to fund promising research on Charcot-Marie-Tooth
HNF is committed to pursuing treatment and a cure for Charcot-Marie-Tooth disease, and we cannot fulfill this mission without your help.
Charcot-Marie-Tooth Awareness: In the News!
NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF’s most prominent partners who is the subject of an upcoming documentary, Bernadette.
CMT Research Update: HNF-Funded Projects
We are currently funding two very important research projects, one for CMT type 1 and the other for CMT type 2A.
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Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (30)
GRIN Patient Registry (39)
HNF Team (10)
Industry (5)
Living with CMT (78)
Media (1)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (22)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
Genetic Testing (11)
Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
Neurotoxic Drugs (4)
Newly Diagnosed (7)
Nutrition (4)
Occupational Thearpy (2)
Pain (8)
Podcasts (2)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (33)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (96)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (29)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
TRIAD – Therapeutics (4)
Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
Types of CMT (1)
CMT Type – CMT1A (22)
CMT Type – CMT1B (2)
CMT Type – CMT1X (3)
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CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
CMT Type – HNPP (3)
CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
Upcoming Events (2)
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