“I call Charcot-Marie-Tooth a blind disease because you can’t see it. People say I look fine and can’t understand that I have a problem.
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Courtney
Personal Stories: Barb Vonada, triathlete, veteran and more!
Recently, the 42 year old mom of three joined Team CMT- Richmond hoping to spread awareness and raise funds for research and a cure.
May 5, 2013: Five Boro Bike Tour
HNF is thrilled to have been chosen this year as a Charity Partner for the TD Bank Five Boro Bike Tour.
Saturday, Nov 10, 2012: Richmond Half-Marathon Fundraiser
The Richmond, Va branch of Team CMT, Richmond, VA will participate in the American Family Fitness Half Marathon on Saturday, November 10, 2012. Team CMT will be running on behalf of the Hereditary Neuropathy Foundation to raise awareness of Charcot-Marie-Tooth disease.
Expert Q and A: Orthopedic Surgeon, Dr. Glenn Pfeffer
Learn more from orthopedic surgeon Glenn Pfeffer, MD about surgery and CMT patients.
A Bad Break…When You Have Charcot-Marie-Tooth
Dr. Sheskier says that with CMT and other neurogenic diseases, the danger is that the patient is fooled into thinking his or her bone is fully healed when it is not.
Medical Fields Related to Surgery
Learn more about the medical fields related to surgery.
Spotlight: Bike New York Riders
On Sunday, May 5, 2013 among the crowd of 32,000 cyclists expected to participate in New York City’s TD Five Boro Bike Tour will be two busy New Yorkers cycling to raise awareness of and funds for Charcot-Marie-Tooth.
Spotlight on the Mattheiss Family
Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community.
March 31, 2012–Spin for the Cure, New Jersey!
On Saturday, March 31st from 10am-12pm we’ll be spinning away at The Club at Morristown, 118 Headquarters Plaza, Morristown, NJ.
Social Security Programs for Those with Charcot-Marie-Tooth
Many people think social security benefits are only for the elderly or retired, but social security benefits are also available for people who meet the government’s definition of disability.
More Magazine features story on Charcot-Marie-Tooth
A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.
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