On Sunday, May 5, 2013 among the crowd of 32,000 cyclists expected to participate in New York City’s TD Five Boro Bike Tour will be two busy New Yorkers cycling to raise awareness of and funds for Charcot-Marie-Tooth.
Author Archive
Courtney
Spotlight on the Mattheiss Family
Parents Lori and Jim and children Kaitlyn and Jacob are committed to increasing CMT awareness in their community.
March 31, 2012–Spin for the Cure, New Jersey!
On Saturday, March 31st from 10am-12pm we’ll be spinning away at The Club at Morristown, 118 Headquarters Plaza, Morristown, NJ.
Social Security Programs for Those with Charcot-Marie-Tooth
Many people think social security benefits are only for the elderly or retired, but social security benefits are also available for people who meet the government’s definition of disability.
More Magazine features story on Charcot-Marie-Tooth
A recent article in More magazine featured the story of Hereditary Neuropathy Foundation president Allison Moore and her experiences living with Charcot-Marie-Tooth.
Holistic Wellness, Occupational Therapy and CMT
OT’s can help find holistic therapies and will collaborate with healthcare professionals to facilitate treatment.
HNF to fund promising research on Charcot-Marie-Tooth
HNF is committed to pursuing treatment and a cure for Charcot-Marie-Tooth disease, and we cannot fulfill this mission without your help.
Charcot-Marie-Tooth Awareness: In the News!
NBC10 in Philadelphia featured a story on Bernadette Scarduzio, one of HNF’s most prominent partners who is the subject of an upcoming documentary, Bernadette.
CMT Research Update: HNF-Funded Projects
We are currently funding two very important research projects, one for CMT type 1 and the other for CMT type 2A.
Exercise and Activity Training for Patients with CMT: Application of the Exercise is Medicine Mode
The American College of Sports Medicine hosted the First World Congress for the “Exercise Is Medicine” (EIM) initiative in Baltimore, Maryland. The EIM enterprise is dedicated to improving health, wellness, and quality-of-life through regular physical activity and healthy behaviors.
Benefits of Exercise for Kids with CMT
Children with CMT should be active for a variety of reasons. Learn more about the benefits of exercise for kids.
Knowledge is Power: Overview of Special Education Law
Strong advocacy for education is often needed to ensure your child receives appropriate accommodations and services for academic success.
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