When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”
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Film Release: Bernadette!
The Hereditary Neuropathy Foundation (HNF) is thrilled to announce the completion of the film, “Bernadette.”
July 28, 2012: Hamptons Spin-a-thon & Party!
The Hereditary Neuropathy Foundation (HNF) is thrilled to partner with B East Amgansett, NY and The Breakwater Yacht Club, Sag Harbor, New York, for our Fifth Annual Spin for the Cure.
A Great Ride at Bike New York
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
Stem Cell Line with Charcot-Marie-Tooth Available for Research
Thanks to collaborative efforts of the University of Michigan Consortium for Stem Cell Therapies and molecular research scientists at Michigan-based Genesis Genetics, scientists are one step closer to understanding Charcot-Marie-Tooth disease.
Team CMT leader finishes second at Boston Marathon
Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16!
Di Billick Runs 10k for Team CMT
Di also did something special for Team CMT. “I took my body to the absolute limit yesterday, Sunday, April 15th, in honor of Chris Wodke’s Boston Marathon run which took place the next day. I walked (no jogging or running) in one direction and had my husband pick me up when I couldn’t go any further.”
Coaching Athletes with Charcot-Marie-Tooth
Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it.
June 3, 2012: Wine, Beer and Vodka Tasting
Join us on Sunday, June 3, 2012 in Wolcott, CT for a Wine, Beer and Vodka tasting to raise money and awareness of Charcot-Marie-Tooth.
First Spin-a-thon of 2012 a Smashing Success!
In addition to donating space for the Spin-A-Thon and brunch, The Club encouraged attendees to make use of all the facilities for the day.
CMT Research Update: DNA Methylation and Exercise
An article in the March 7, 2012 edition of Cell Metabolism Journal supports the benefits of exercise, suggesting possible enhanced effects of combined exercise and drug treatment in patients with CMT.
April 16, 2012: Team CMT Leader to Run Boston Marathon
As manager of Team CMT and in partnership with The Hereditary Neuropathy Foundation, Chris intends to use this opportunity to raise awareness about CMT on a grander scale.
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