On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
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Courtney
HNF Charity Partner for the MetroTex Charitable Trust Run For Fun Irving, Texas: Saturday May 3, 2014
The Hereditary Neuropathy Foundation (HNF) has been chosen as the Charity Partner for the MetroTex Charitable Trust Run for Fun.
HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
TEAM CMT & CHRIS WODKE
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.
Personal Profile: Estela Lugo, Designing Décor
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
Dr. Robert Baloh Answers Our Questions About iPS Cell Research
Big news is happening on a cellular level at Cedars-Sinai Medical Center’s Regenerative Medicine Institute in Los Angeles, CA. Robert H. Baloh, MD PhD, Director of Neuromuscular Medicine, in conjunction with Patrick D. Lyden, MD Neurology Dept. Chair, and Clive Svendsen, PhD, Institute Director, are studying disorders that start in nerve cells.
March 2013: Arlene sequel available!
Arlene, the Rebel Queen will be available in March! You can get a copy on Amazon, Barnes and Noble, or most other retailers and wholesalers.
HNF Signs Coalition Letter to Congress
On November 1, CMS announced in the 2013 Medicare Physician Fee Schedule that it will severely reduce payment for EMG and NCS.
Running for Three Generations with CMT
These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease
Grace’s Courage Crusade Brunch 2012
Warm temperatures and brilliant sunshine welcomed several hundred guests attending Grace’s Courage Crusade this year
Arlene On the Scene: Barrington Books Fall Festival
Together, she and Carol answered questions from young and old alike about Charcot-Marie-Tooth (CMT). “The festival was such a nice opportunity to let kids know about Arlene and raise awareness about CMT,”
Arlene On the Scene Sequel!
Coming in March 2013, the sequel to parent and teacher favorite, Arlene On the Scene will be on the shelves!
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