Learn more about key laws and benefits, including the ADAAA, FERPA, and IDEIA.
Author Archive
Courtney
Charcot-Marie-Tooth Frequently Asked Questions
Charcot-Marie-Tooth Frequently Asked Questions: Learn more about the most commonly inherited peripheral neuropathy affecting approximately 1 in 2500 adults.
Living with CMT: Key Topics
There are a number of adaptive aids that can help make everyday tasks easier. This section lists just a few of them. Some of these items can be adapted from materials at home, others must be purchased.
Exercise for people with CMT: Frequently Asked Questions Q & A Dr. Robert Chetlin
We answer the most frequently asked questions about exercise for people with CMT.
Neurotoxic Drugs and Charcot-Marie-Tooth Disease
Do you know about the dangers that neurotoxic drugs hold for patients with Charcot-Marie-Tooth disease?
CMT Personal Story: Chemotherapy and Charcot-Marie-Tooth
Learn how chemotherapy jump-started CMT in Karen’s body, leaving her in leg braces for several months.
Embrace the Brace: A Mother’s Perspective on Helios
We had the highest of hopes that these custom braces would be the difference between night and day for Dakota.
Foods That Help Muscle Recovery
If you have Charcot-Marie-Tooth, moderate exercise is usually best, especially when combined with a healthy diet.
Perception Shift
Throughout my life many different people have impacted my views on certain things, whether it be how I speak, how I dress, what I eat or even who I’m friends with. I now consider my viewpoint on life much more mature and sophisticated than it was 10 years ago or even 5 years ago. I think more logically than ever before and I am much wiser now because of my mistakes and because of my success. Recently in my life I met another person who greatly impacted my life.
Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth
In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.
Member Alyson O’Connor Won’t Let Her CMT Stop Her!
Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.
From the words of a CMT Hero
“FAITH, LOVE AND HOPE KEEPS TIMMY DIXON GOING!”
I often wonder what it’s like to be like everyone else out there. How great it would be to do things most consider easily accessible and within reach. I believe in myself; it’s not really about that. Sometimes I just feel alone, cold, and bitter after considering life in general. Then I ponder a thought: there are too many hurdles I’ve already jumped over
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PFDD Meeting 28SEP2018 (5)
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TCS New York City Marathon (7)
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