CMT patients and their health care providers need to be aware about certain neurotoxic drugs that might worsen their neuropathy.
Author Archive
Courtney
Breaking Down The Barriers Of Charcot-Marie-Tooth Disease
Kristin is redefining what it’s like to live with Charcot-Marie-Tooth disease. Determined to be seen for who she is, rather than her disability, Kristin faces the daily challenges of CMT head on with grace, dignity, and perseverance.
Kristin’s story not only shows us how she is redefining herself, but how she is giving others living with CMT the courage to do the same. Let’s learn more about Kristin and how she’s breaking down the barriers of CMT.
CBS News Report: A Mother’s Quest To Find Cure For Rare Genetic Defect
Raising global awareness of inherited neuropathies is a daily challenge we face head on at The...
Thursday, December 3 – Sunday, December 6: Champions for Charity Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop Hereditary Neuropathy Foundation is participating...
Save the Date: Friday January 29, 2016 Boca Raton, Florida to Benefit CMT Type 2
Charity Card Party Brunch and Boutique Please join us January 29, 2016 at 10:30 at Broken...
One More Rep: Ed Moore Is Working Out For Charcot-Marie-Tooth Awareness
Ed Moore, a Team CMT leader who is committed to spreading awareness of CMT with a pretty creative and bold fundraising strategy.
Jillian’s Cure Super Hero 5K: Help Save Children With Optic Atrophy
Come join us on April 23, 2016, for Jillian’s Cure Super Hero 5K event in Columbia, SC. Jillian’s Cure was founded by Carolyn Nava, after her daughter Jillian was diagnosed with Optic Atrophy/Optic Neuropathy: a rare inherited neuropathy with no effective treatments or cures.
Hereditary Optic Neuropathy
Optic neuropathy is one of the symptoms of a less common form of Charcot-Marie-Tooth disease known as CMT6.
#SeptemberSelfieCMT For Charcot-Marie-Tooth Awareness Month
All you have to do is snap a selfie with #SeptemberSelfieCMT in the photo and share it on all your social media pages.
Muscle Matters: Exercise And Charcot-Marie-Tooth Disease
Exercise has the potential to improve functional ability, independence, and quality-of-life for CMT patients.
A Bi-Directional, Translational Model of Resistance-Type Exercise Training in the Management of Charcot-Marie-Tooth (CMT) Disease
A team of government researchers, including Dr. Robert Chetlin, have collaborated with Dr. Michael Sereda and Dr. Klaus Nave of the Max Planck Institute for Experimental Medicine (MPI) to successfully secure the CMT1A transgenic rat from MPI and establish a colony in the United States.
What It’s Like To Live With Charcot-Marie-Tooth Disease: The Stories Of Those Who Know It Best
The study is a collection of over 80 intimate and candid interviews, painting a vivid picture of those living with CMT. These interviews brought to light a range of different experiences: from devastating and heart-wrenching, to courageous and inspiring.
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Faces of CMT – Addie (2)
Faces of CMT – Bernadette (9)
Faces of CMT – CMT4A (7)
Faces of CMT – Grace (18)
Faces of CMT – HELP Fund (8)
Faces of CMT – HNPP Fund (3)
Faces of CMT – James (1)
Faces of CMT – Jaxson (7)
Faces of CMT – Zach (18)
Featured (28)
GRIN Patient Registry (39)
HNF Team (10)
Industry (3)
Living with CMT (78)
Medical professionals (2)
Movement Is Medicine (17)
Optic Hereditary Neuropathy (5)
Our Impact (3)
Clinical Trials (21)
PFDD (1)
PFDD Meeting 28SEP2018 (5)
Past Events (35)
Patience Resources (0)
Accessible Travel (4)
Bracing (11)
Breathing (3)
Canine Companions (5)
Cannabis (8)
Caregivers (3)
Dating and Relationships (7)
Emotional and Mental Health (9)
Family Planning (1)
Fashion and Products (1)
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Home Accessibility (2)
Inclusive Employment (3)
Inspire Community (7)
Legal Rights and Benefits (8)
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Newly Diagnosed (7)
Nutrition (3)
Occupational Thearpy (2)
Pain (8)
Podiatry (4)
PT and Exercise (25)
Research and Critical Trials (29)
School & College (6)
Surgery (10)
Telemedicine (1)
Tips and Hacks (2)
Patient-Focused Research (1)
Pediatrics & CMT (10)
Registry (16)
Research (95)
School Outreach Program and Team CMT Kids (1)
Special Events (2)
Bike New York (19)
Other Events (4)
Spin-a-thon (7)
TCS New York City Marathon (7)
Team CMT Members (61)
The CMT Genie (6)
TRIAD (28)
TRIAD – Clinical Trial Readiness (5)
Vitaccess (1)
TRIAD – Research Gifts (0)
University of Helsinki (2)
Veneto (1)
TRIAD – Sponsored Research (0)
Burke Insitute (3)
University of Cambridge (1)
University of Miami (1)
University of San Antonio Texas (1)
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Applied Therapeutics (10)
Pharnext (10)
Rarebase (4)
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CMT Type – CMT1A (22)
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CMT Type – CMT4A GDAP1 (3)
CMT Type – CNTNAP1 (1)
CMT Type – GAN (5)
CMT Type – HDAC6 (1)
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CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
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