Does your Charcot-Marie-Tooth symptoms make dog ownership difficult? Do you wear braces that make...
Author Archive
Courtney
Champions For Charity: Helping Those Living With Charcot-Marie-Tooth
What if every purchase you make this holiday season could earn dollars for Charcot‐Marie‐Tooth...
Leg Braces, AFOs & CMT: Finding the Right Fit
Has the time come for leg braces? If so, there are a lot of options to find the right brace for...
Global Registry For Inherited Neuropathies: Your Questions Answered
Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.
Team CMT: Join The Movement & Make A Difference!
The holiday season is a great opportunity to make a difference for those living with...
#MyGivingStory
This November, the #GivingTuesday movement is running #MyGivingStory, a new storytelling contest...
#GivingTuesday December 1, 2015: Giving Back This Holiday Season
The Hereditary Neuropathy Foundation is proud to continue our support of #GivingTuesday. Come join us on December 1st and participate in this globally recognized movement of giving and philanthropy.
Tips For Living With Charcot-Marie-Tooth During The Holidays
CMT patients can give themselves the best opportunity to stay healthy and happy this holiday season with these helpful tips.
Neurotoxic Drugs & Charcot-Marie-Tooth Disease: What You Need To Know
CMT patients and their health care providers need to be aware about certain neurotoxic drugs that might worsen their neuropathy.
Breaking Down The Barriers Of Charcot-Marie-Tooth Disease
Kristin is redefining what it’s like to live with Charcot-Marie-Tooth disease. Determined to be seen for who she is, rather than her disability, Kristin faces the daily challenges of CMT head on with grace, dignity, and perseverance.
Kristin’s story not only shows us how she is redefining herself, but how she is giving others living with CMT the courage to do the same. Let’s learn more about Kristin and how she’s breaking down the barriers of CMT.
CBS News Report: A Mother’s Quest To Find Cure For Rare Genetic Defect
Raising global awareness of inherited neuropathies is a daily challenge we face head on at The...
Thursday, December 3 – Sunday, December 6: Champions for Charity Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop Hereditary Neuropathy Foundation is participating...
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Faces of CMT – Jaxson (7)
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CMT Type – HDAC6 (1)
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CMT Type – MTRFR-C12orf65 (6)
CMT Type – SORD Deficiency (9)
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