The Hereditary Neuropathy Foundation (HNF) is thrilled to participate as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour for the fifth year in a row. This is an extraordinary event where participants bike through all five New York boroughs to help increase awareness and raise dollars to fund Charcot-Marie-Tooth (CMT) research.
Medicare is providing better access to your health information with their expanded Blue Button feature.
On October 23, 2015 the Victor New York Blue Devils Football boosters and coaching staff dedicated their first playoff game from their undefeated season to team manager Zach Houliares.
The Hereditary Neuropathy Foundation is proud and excited to kick off the charitable season with #GivingTuesday on December 1st. #GivingTuesday unites people across the world by sharing our capacity to care for and empower each other.
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Does your Charcot-Marie-Tooth symptoms make dog ownership difficult? Do you wear braces that make...
What if every purchase you make this holiday season could earn dollars for Charcot‐Marie‐Tooth...
Has the time come for leg braces? If so, there are a lot of options to find the right brace for...
Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.
The holiday season is a great opportunity to make a difference for those living with...
This November, the #GivingTuesday movement is running #MyGivingStory, a new storytelling contest...
The Hereditary Neuropathy Foundation is proud to continue our support of #GivingTuesday. Come join us on December 1st and participate in this globally recognized movement of giving and philanthropy.
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